Objectives: The population of older adults is growing rapidly, creating high demand for the involvement of working family caregivers. This concurrent mixed-methods study sought to obtain information from working family caregivers regarding their perceptions of the usefulness of an online employee assistance support tool. Methods: Working family caregivers (n = 15) participated in a semi-structured focus group completing a demographic survey and the Modified Caregiver Strain Index (MCSI). Results: Total MCSI score had a statistically significant positive relationship with hours of care provision per week and presented an inverse association with caregiver age. Caregiver age had a statistically significant inverse relationship with the perception of caregiving as confining. Qualitative data identified needs for family caregivers support in three major themes: knowledge, understanding, and connection. Discussion: This study highlights a myriad of caregiver burden experiences and the necessity of various supports for each caregiver’s unique situation beyond the traditional workplace polices.
Cite this paper
Gibbs, D. , Bilotta, J. , Bowens, C. , Dougherty, M. , Murphy, E. , Richardson, N. and Schneider-Adams, M. (2021). Working Family Caregivers’ Perception of Usefulness of an Online Employee Assistance Support Tool: A Pilot Study. Open Access Library Journal, 8, e7663. doi: http://dx.doi.org/10.4236/oalib.1107663.
National Alliance for Caregiving and Emblem Health (2010) Care for the Family Caregiver: A Place to Start.
http://www.caregiverslibrary.org/Portals/0/CGM.Care%20for%20the%20Caregiver%20-%20A%20place%20to%20startCFC.pdf
American Association of Retired Persons (AARP) and National Alliance for Caregiving (2015) Caregivers of Older Adults: A Focused Look at Those Caring for Someone Age 50 .
https://www.aarp.org/content/dam/aarp/ppi/2015/caregivers-of-older-adults-focused-look.pdf
Pew Research Center (2018) Adult Caregiving: Detailed Tables. Pew Research Center Analysis of 2012-2017 American Time Use Survey Data (IPUMS).
https://www.pewresearch.org/wp-content/uploads/2018/11/FT_18.11.09_Caregivers_Tables1.pdf
Matuska, K. and Barrett, K. (2014) Patterns of Occupation. In: Schell, B.A.B., Gillen, G. and Scaffa, M.E., Eds, Willard & Spackman’s Occupational Therapy, 12th Edition, Lippincott Williams & Wilkins, Philadelphia, 163-172.
Burton, W.N., Chen, C.Y., Conti, D.J., Pransky, G. and Edington, D.W. (2004) Caregiving for Ill Dependents and Its Association with Employee Health Risks and Productivity. Journal of Occupational and Environmental Medicine, 46, 1048-1056.
https://doi.org/10.1097/01.jom.0000141830.72507.32
Calvano, L. (2013) Tug of War: Caring for Our Elders While Remaining Productive at Work. Academy of Management Perspectives, 27, 204-218.
https://doi.org/10.5465/amp.2012.0095
Gaugler, J., Pestka, D., Davila, H., Sales, R., Owen, G., Baumgartner, S., Shook, R., Cunningham, J. and Kenney, M. (2018) The Complexities of Family Caregiving at Work: A Mixed-Methods Study. International Journal of Aging and Human Development, 87, 347-376. https://doi.org/10.1177/0091415017752936
Lilly, M.B., LaPorte, A. and Coyte, P.C. (2007) Labor Market Work and Home Care’s Unpaid Caregivers: A Systematic Review of Labor Force Participation Rates, Predictors of Labor Market Withdrawal, and Hours of Work. The Milbank Quarterly, 85, 641-690. https://doi.org/10.1111/j.1468-0009.2007.00504.x
Liu, J., Lu, N. and Lou, V. (2017) Care Tasks in the Stress Process for Family Caregivers in Urban China. Clinical Gerontologist, 40, 428-434.
https://doi.org/10.1080/07317115.2017.1305033
Longacre, M.L., Valdmanis, V.G., Handorf, E.A. and Fang, C.Y. (2017) Work Impact and Emotional Stress among Informal Caregivers for Older Adults. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 72, 522-531.
https://doi.org/10.1093/geronb/gbw027
Paulson, D., Bassett, R., Kitsmiller, E., Luther, K. and Conner, N. (2017) When Employment and Caregiving Collide: Predictors of Labor Force Participation in Prospective and Current Caregivers. Clinical Gerontologist, 40, 401-412.
https://doi.org/10.1080/07317115.2016.1198856
Wolff, J.L., Spillman, B.C., Freedman, V.A. and Kasper, J.D. (2016) A National Profile of Family and Unpaid Caregivers Who Assist Older Adults with Health Care Activities. JAMA Internal Medicine, 176, 372-379.
https://doi.org/10.1001/jamainternmed.2015.7664
Fossey, E. (2019) Work as Occupation. In: Brown, C., Stoffel, V.C. and Muňoz J.P., Eds., Occupational Therapy in Mental Health: A Vision for Participation, 2nd Edition, F.A. Davis Company, Philadelphia, 853-871.
Hunt, L.A. (2015) Well-Being and Employment. In: Hunt, L.A. and Wolverson, C. Work and the Older Person: Increasing Longevity and Well-Being, SLACK Incorporated, Thorofare, 63-73.
Cole, K., Daly, A. and Mak, A. (2009) Good for the Soul: The Relationship between Work, Wellbeing and Psychological Capital. Journal of Socio-Economics, 38, 464-474. https://doi.org/10.1016/j.socec.2008.10.004
Stine-Morrow, E., Parisi, J., Morrow, D. and Park, D. (2008) The Effects of an Engaged Lifestyle on Cognitive Vitality: A Field Experiment. Psychology and Aging, 23, 778-786. https://doi.org/10.1037/a0014341
Grossman, M.R. and Gruenewald, T.L. (2017) Caregiving and Perceived Generativity: A Positive and Protective Aspect of Providing Care? Clinical Gerontologist, 40, 435-447. https://doi.org/10.1080/07317115.2017.1317686
Corvin, J., Chan, I., Tezak, A., Carpenter, K., Aguado Loi, C., Gonzales, J. and Hoare, I. (2017) Caring for Individuals with Chronic Illness and Minor Depression: Latino Perceptions of Caregiver Burden. Journal of Gerontological Social Work, 60, 79-95. https://doi.org/10.1080/01634372.2016.1268230
Gray, K., Horowitz, B.P., O’Sullivan, A., Behr, S.K. and Abreu, B.C. (2007) Occupational Therapy’s Role in the Occupation of Caregiving. OT Practice, 12, CE1-CE8.
Pizzi, M.A. (2010) Promoting Health and Occupational Participation with Caregivers. In: Scaffa, M.E., Reitz, S.M. and Pizzi, M.A., Eds., Occupational Therapy in the Promotion of Health and Wellness, F.A. Davis Company, Philadelphia, 397-414.
Schulz, R. and Tompkins, C.A. (2010) Informal Caregivers in the United States: Prevalence, Caregiver, Characteristics, and Ability to Provide Care. In: The Role of Human Factors in Home Health Care: Workshop Summary. National Academies Press, Washington DC. https://www.ncbi.nlm.nih.gov/books/NBK210048/
Halpern, M.T., Fiero, M.H. and Bell, M.L. (2017) Impact of Caregiver Activities and social Supports on Multidimensional Caregiver Burden: Analyses from Representative Surveys of Cancer Patients and Their Caregivers. Quality of Life Research, 26, 1587-1595. https://doi.org/10.1007/s11136-017-1505-9
Thornton, M. and Travis, S.S. (2003) Analysis of the Reliability of the Modified Caregiver Strain Index. The Journals of Gerontology: Series B, 58, S127-S132.
https://doi.org/10.1093/geronb/58.2.S127
Zarit, S.H. and Zarit, J.M. (2015) Family Caregiving. In: Bensadon, B.A., Ed., Psychology and Geriatrics: Integrated Care for an Aging Nation, Elsevier, New York, 21-43. https://doi.org/10.1016/B978-0-12-420123-1.00002-2
Barrett, L. (2013) Caregivers: Life Changes and Coping Strategies. American Association of Retired Persons, Washington DC.
https://www.aarp.org/research/topics/care/info-2014/caregivers-life-changes-and-coping-strategies.html
Cooper, C., Katona, C., Orrell, M. and Livingston, G. (2008) Coping Strategies, Anxiety and Depression in Caregivers of People with Alzheimer’s Disease. International Journal of Geriatric Psychiatry, 23, 929-936. https://doi.org/10.1002/gps.2007
Van Dongen, I., Josephsson, S. and Ekstam, L. (2014) Changes in Daily Occupations and the Meaning of Work for Three Women Caring for Relative’s Post-Stroke. Scandinavian Journal of Occupational Therapy, 21, 348-358.
https://doi.org/10.3109/11038128.2014.903995
Yang, Y.T. and Gimm, G. (2013) Caring for Elder Parents: A Comparative Evaluation of Family Leave Laws. The Journal of Law, Medicine and Ethics, 41, 501-513.
https://doi.org/10.1111/jlme.12058
Chen, M. (2016) The Growing Costs and Burden of Family Caregiving of Older Adults: A Review of Paid Sick Leave and Family Leave Policies. The Gerontologist, 56, 391-396. https://doi.org/10.1093/geront/gnu093
Administration for Community Living (2019) National Family Caregiver Support Program.
https://acl.gov/programs/support-caregivers/national-family-caregiver-support-program
Jang, S.J., Park, R. and Zippay, A. (2010) The Interaction Effects of Scheduling Control and Work-Life Balance Programs on Job Satisfaction and Mental Health. International Journal of Social Welfare, 20, 135-143.
https://doi.org/10.1111/j.1468-2397.2010.00739.x
Dembe, A. and Partridge, J. (2011) The Benefits of Employer-Sponsored Elder Care Programs: Case Studies and Policy Recommendations. Journal of Workplace Behavioral Health, 26, 252-270. https://doi.org/10.1080/15555240.2011.589755
Ireson, R., Sethi, B. and Williams, A. (2018) Availability of Caregiver-Friendly Workplace policies (CFWPs): An International Scoping Review. Health & Social Care in the Community, 26, e1-e14. https://doi.org/10.1111/hsc.12347
Onega, L.L. (2008) Helping Those Who Help Others: The Modified Caregiver Strain Index (MCSI). American Journal of Nursing, 108, 62-69.
https://doi.org/10.1097/01.NAJ.0000334528.90459.9a
National Alliance for Caregiving and AARP Public Policy Institute (2015) Caregiver Profile: The Typical Caregiver.
https://www.aarp.org/content/dam/aarp/ppi/2015/AARP1001_Typical_CGProfileAug26.pdf
Cronin, A. (2016) Middle Adulthood. In: Cronin, A. and Mandich, M., Eds., Human Development and Performance throughout the Lifespan, 2nd Edition, Cengage Learning, Boston, 379-404.
LaValley, S.A., Vest, B.M. and Hall, V. (2019) Challenges to and Strategies for Formal Service Utilization among Caregivers in an Underserved Community. Journal of Gerontological Social Work, 62, 108-122.
https://doi.org/10.1080/01634372.2018.1542372
Zhou, D.R., Hung, S. and Ting Lo, T.L. (2020) Can We Hit Two Birds with One Stone: An Effectiveness Study of Peer-Support Groups for Low-Income Spousal and Adult Children Caregivers of Hong Kong Older Adults. Journal of Gerontological Social Work, 63, 227-249. https://doi.org/10.1080/01634372.2020.1746722
Grigorovich, A., Rittenberg, N., Dick, T., McCann, A., Abbott, A., Kmielauskas, A., Estioko, V., Kulasingham, S. and Cameron, J.I. (2016) Roles and Coping Strategies of Sons Caring for a Parent with Dementia. American Journal of Occupational Therapy, 70, Article ID: 7001260020. https://doi.org/10.5014/ajot.2016.017715
Sundar, V., Fox, S.W. and Phillips, K.G. (2014) Transitions in Caregiving: Evaluating a Person-Centered Approach to Supporting Family Caregivers in the Community. Journal of Gerontological Social Work, 57, 750-765.
https://doi.org/10.1080/01634372.2013.847885
Wilcox, S., O’Sullivan, P. and King, A. (2001) Caregiver Coping Strategies: Wives versus Daughters. Clinical Gerontologist, 23, 81-97.
https://doi.org/10.1300/J018v23n01_08
Milliken, A., Mahoney, E.K., Mahoney, K.J., Mignosa, K., Rodriguez, I., Cuchetti, C. and Inoue, M. (2019) “I’m Just Trying to Cope for Both of Us”: Challenges and Supports of Family Caregivers in Participant-Directed Programs. Journal of Gerontological Social Work, 62, 149-171. https://doi.org/10.1080/01634372.2018.1475438