Whereas there has been increased attention paid to accommodations for neurodiverse populations in education and the workplace, the way cultural institutions—including museums, art galleries and other public collections—are able to support such an audience remains understudied. The educational support afforded by law for children with autism spectrum disorders (ASD) is prescriptive and includes Individualized Education Plans (IEPs) with educators trained in providing identified intervention strategies. At the same time, there have？been no such agreed upon strategies to support the same population in public educational spaces, especially later in life as adults, who often go undiagnosed. This study seeks to reconsider the role of cultural institutions in serving the neurodiverse population beyond childhood and provide practical strategies to address their needs. Through programs that include staff training and programming that goes beyond “sensory days,” institutions can ensure that the educational opportunities afforded by their collections can support greater inclusivity and diversity.
References
[1]
AAM (American Alliance of Museums) (2020). Audiences and Inclusion: A Primer for Cultivating More Inclusive Attitudes among the Public. Wilkening Consulting.
[2]
Andermann, J., & Arnold-de Simine, S. (2012). Museums and the Educational Turn: History, Memory, Inclusivity. Journal of Educational Media, Memory, and Society, 4, 1-7.
https://doi.org/10.3167/jemms.2012.040201
[3]
Ariese, C., & Wróblewska, M. (2022). Practicing Decoloniality in Museums: A Guide with Global Examples (p. 106). Amsterdam University Press.
https://doi.org/10.1515/9789048554836
[4]
Botha, M., Hanlon, J., & Williams, G. L. (2021). Does Language Matter? Identity-First versus Person-First Language Use in Autism Research: A Response to Vivanti. Journal of Autism and Developmental Disorders, 1-9.
https://doi.org/10.1007/s10803-020-04858-w
[5]
Centers for Disease Control and Prevention (CDC) (2022). What Is Autism Spectrum Disorder (ASD)? https://www.cdc.gov/ncbddd/autism/facts.html
[6]
de Broize, M., Evans, K., Whitehouse, A. J., Wray, J., Eapen, V., & Urbanowicz, A. (2022). Exploring the Experience of Seeking an Autism Diagnosis as an Adult. Autism in Adulthood, 4, 130-140. https://doi.org/10.1089/aut.2021.0028
[7]
Deakin, T. (2022). How Can Museums Increase Access for Neurodiverse Audiences? Museum Next: Health & Wellbeing.
https://www.museumnext.com/article/how-can-museums-increase-accessibility-for-neurodiverse-audiences/?adlt=strict
[8]
Eckersley, S., Vos, C., Szymańska-Matusiewicz, G., Glowacka-Grajper, M., Wawrzyniak, J., Mears, H., & Davenport, B. (2022). Supporting Inclusive Spaces: Enabling Recognition in Diverse Cultural and Community Spaces (Policy Brief 1). en/counter/points.
[9]
Eichenlaub, J. (2022). Constructing Fidgeting: Integrating Extended Cognition, Mind Wandering, and Mindless Interaction in Pursuit of a Productive Mood State. Master’s Thesis, Delft University of Technology.
[10]
Euan’s Guide (n.d.). The Access Survey 2017.
https://www.euansguide.com/news/the-access-survey-2017-results/
[11]
Fletcher, T. S., Wiskera, E. S., Wilbur, L. H., & Garcia, N. M. (2022). The Sensory Totes Programme: Sensory-Friendly Autism Program Innovations Designed to Meet COVID-19 Challenges. World Federation of Occupational Therapists Bulletin, 78, 44-52. https://doi.org/10.1080/14473828.2021.1943868
[12]
Fraser, J. (2022). Museum Languages. Curator: The Museum Journal, 65, 229-230.
https://doi.org/10.1111/cura.12470
[13]
Ghadim, M. R., & Daugherty, L. (Eds.). (2021). Museum-Based Art Therapy: A Collaborative Effort with Access, Education, and Public Programs. Routledge.
https://doi.org/10.4324/9781003014386
[14]
Giri, A., Aylott, J., Giri, P., Ferguson-Wormley, S., & Evans, J. (2022). Lived Experience and the Social Model of Disability: Conflicted and Inter-Dependent Ambitions for Employment of People with a Learning Disability and Their Family Carers. British Journal of Learning Disabilities, 50, 98-106. https://doi.org/10.1111/bld.12378
[15]
Gray, C. A. (1998). Social Stories and Comic Strip Conversations with Students with Asperger Syndrome and High-Functioning Autism. In E. Schopler, G. B., Mesibov, & L.J. Kunce (Eds.), Asperger Syndrome or High-Functioning Autism (pp. 167-198)? Springer. https://doi.org/10.1007/978-1-4615-5369-4_9
[16]
Gurian, E. H. (2001). Function Follows Form: How Mixed-Used Spaces in Museums Build Community. Curator: The Museum Journal, 44, 97-113.
https://doi.org/10.1111/j.2151-6952.2001.tb00032.x
[17]
Hladik, L., & Ausderau, K. (2022). Stakeholder Collaboration to Develop an Evaluation Tool to Assess the Accessibility of Cultural Institutions for Families with Children with Autism. The American Journal of Occupational Therapy, 76, Article ID: 7610510012.
https://doi.org/10.5014/ajot.2022.76S1-RP12
[18]
Hladik, L., Meyer, R., Allen, S., Bonnici, S., Froelke, N. A., Romaniak, H. et al. (2022). Accessibility and Inclusion for Families with Children with Autism Spectrum Disorders in Cultural Institutions. Curator: The Museum Journal, 65, 435-449.
https://doi.org/10.1111/cura.12468
[19]
Jeffery-Clay, K. R. (1998). Constructivism in Museums: How Museums Create Meaningful Learning Environments. Journal of Museum Education, 23, 3-7.
https://doi.org/10.1080/10598650.1998.11510362
[20]
Jenson, R. J., Lee, M. S., Day, A. D., Hughes, A. E., Maroushek, E. E., & Roberts, K. D. (2022). Effective Inclusion Practices for Neurodiverse Children and Adolescents in Informal STEM Learning: A Systematic Review Protocol. (Preprint)
https://doi.org/10.21203/rs.3.rs-1061784/v1
[21]
Johnson, M. I. (2022). How Neurodiversity Centered Museum Education within Art Museums Can Benefit Children with ADHD and Autism Spectrum Disorders. State University of New York College at Buffalo, Buffalo State College.
[22]
Kennedy, J. (2006). Inclusion in the Museum: A Toolkit Prototype for People with Autism Spectrum Disorder. Doctoral Dissertation, University of Oregon, Arts and Administration Program.
[23]
Kotler, N., & Kotler, P. (2007). Can Museums Be All Things to All People? Missions, Goals, and Marketing;s Role. In R. Sandell, & R. R. Janes (Eds.), Museum Management and Marketing (pp. 313-330). Routledge.
[24]
Kotowski, R., & Zybert, E. (Eds.) (2020). Museotherapy: How Does It Work? Museums as a Place of Therapy. The National Museum in Kielce.
[25]
Lai, M. C., Lin, H. Y., & Ameis, S. H. (2022). Towards Equitable Diagnoses for Autism and Attention-Deficit/Hyperactivity Disorder across Sexes and Genders. Current Opinion in Psychiatry, 35, 90-100. https://doi.org/10.1097/YCO.0000000000000770
[26]
Li, M., & Ma, Q. H. (2022). “Do Not impose on Others What You Desire.” Research on the Influence of Service Personnel’s Interactive Orientation on Customer Comfort. Journal of Retailing and Consumer Services, 65, Article ID: 102887.
https://doi.org/10.1016/j.jretconser.2021.102887
[27]
Madge, C. (2021). Autism in Museums: Welcoming Families and Young People. Kids in Museums.
https://kidsinmuseums.org.uk/resources/how-can-your-museum-better-welcome-families-and-young-people-with-autism/
[28]
Mammarella, I. C., Cardillo, R., & Semrud-Clikeman, M. (2022). Do Comorbid Symptoms Discriminate between Autism Spectrum Disorder, ADHD and Nonverbal Learning Disability? Research in Developmental Disabilities, 126, Article ID: 104242.
https://doi.org/10.1016/j.ridd.2022.104242
[29]
Matson, J. L., & Boisjoli, J. A. (2009). The Token Economy for Children with Intellectual Disability and/or Autism: A Review. Research in Developmental Disabilities, 30, 240-248. https://doi.org/10.1016/j.ridd.2008.04.001
[30]
McDonald, T. A., Lalani, S., Chen, I., Cotton, C. M., MacDonald, L., Boursoulian, L. J. et al. (2022). Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults. Journal of Autism and Developmental Disorders, 1-21. https://doi.org/10.1007/s10803-022-05598-9
[31]
McQuaid, G. A., Lee, N. R., & Wallace, G. L. (2022). Camouflaging in Autism Spectrum Disorder: Examining the Roles of Sex, Gender Identity, and Diagnostic Timing. Autism, 26, 552-559. https://doi.org/10.1177/13623613211042131
[32]
National Autistic Society (2022). Communication Tools.
https://www.autism.org.uk/advice-and-guidance/topics/communication/communication-tools/social-stories-and-comic-strip-coversations
[33]
Nisticò, V., Faggioli, R., Tedesco, R., Giordano, B., Priori, A., Gambini, O., & Demartini, B. (2022). Brief Report: Sensory Sensitivity Is Associated with Disturbed Eating in Adults with Autism Spectrum Disorders without Intellectual Disabilities. Journal of Autism and Developmental Disorders, 1-6.
https://doi.org/10.1007/s10803-022-05439-9
[34]
Pohawpatchoko, C., Colwell, C., Powell, J., & Lassos, J. (2017). Developing a Native Digital Voice: Technology and Inclusivity in Museums. Museum Anthropology, 40, 52-64.
https://doi.org/10.1111/muan.12130
[35]
Praslova, L. (2022). Your “Autism Awareness Day” Might be Excluding Autistic People. Harvard Business Review.
https://hbr.org/2022/04/your-autism-awareness-day-might-be-excluding-autistic-people
[36]
Reilly, J. (2022). What If We Looked at Museums and Neurodiversity Differently? The Neurodiverse Museum.
https://theneurodiversemuseum.org.uk/uncategorized/what-if-we-looked-at-museums-and-neurodiversity-differently/
[37]
Restrepo-Harner, C., Marsico, K., & Kerr, M. M. (2021). Young Tourists with Disabilities: Considerations and Challenges. In M. M. Kerr, P. R. Stone, & R. H. Price (Eds.), Children, Young People and Dark Tourism (pp. 82-98). Routledge.
https://doi.org/10.4324/9781003032199-8
[38]
Richardson, J. E., & Kletchka, D. C. (2022). Museum Education for Disability Justice and Liberatory Access. Journal of Museum Education, 47, 138-149.
https://doi.org/10.1080/10598650.2022.2072155
[39]
Shaindlin, V. B. (2020). Book Reviews: Diversity, Equity, Accessibility, and Inclusion in Museums. International Journal of Information, Diversity, & Inclusion, 4, 134-136.
https://doi.org/10.33137/ijidi.v4i1.33047
[40]
Sheply, E., & McGinnis, R. (2020). Advancing Disability Inequality through Cultural Institutions. University of Leicester.
[41]
Sullivan-Baca, E., Babicz, M. A., Choudhury, T. K., & Miller, B. I. (2022). The Relationship between Health Literacy and Comfort with Teleneuropsychology in a Veteran Sample. Archives of Clinical Neuropsychology, 37, 292-301.
https://doi.org/10.1093/arclin/acab079
[42]
Theriault, S., & Ljungren, R. (2022). Attending to Each Other: Centering Neurodivergent Museum Professionals in Attentive Facilitation. Journal of Museum Education, 47, 238-250. https://doi.org/10.1080/10598650.2022.2076200
[43]
Vivanti, G. (2020). Ask the Editor: What Is the Most Appropriate Way to Talk about Individuals with a Diagnosis of Autism? Journal of Autism and Developmental Disorders, 50, 691-693. https://doi.org/10.1007/s10803-019-04280-x
[44]
Wigham, S., Ingham, B., Le Couteur, A., Wilson, C., Ensum, I., & Parr, J. R. (2022). A Survey of Autistic Adults, Relatives and Clinical Teams in the United Kingdom: And Delphi Process Consensus Statements on Optimal Autism Diagnostic Assessment for Adults. Autism, Article ID: 13623613211073020.
https://doi.org/10.1177/13623613211073020
[45]
Williams, K., Foulser, A. A., & Tillman, K. A. (2022). Effects of Language on Social Essentialist Beliefs and Stigma about Mental Illness. Proceedings of the Annual Meeting of the Cognitive Science Society (Vol. 44, No. 44).
https://doi.org/10.31234/osf.io/4fgva
