|
Nursing Science 2025
癌症病人心理社会适应评估工具的研究进展
|
Abstract:
准确评估癌症患者的心理社会适应状况对其回归社会和家庭及提升其生活质量和满意度具有重要意义。本文对心理社会适应概念、国内外现有心理社会适应评估工具的主要内容、特点、应用情况等进行综述。分析现有评估工具的优点与不足,以期为开发本土化评估工具提供借鉴,并为开展相关研究提供依据。
Accurately assessing the psychosocial adaptation status of cancer patients is imperative for their successful reintegration into society and family, as well as for improving their quality of life and satisfaction. This paper systematically reviews the conceptual framework of psychosocial adaptation, along with the core components, characteristics, and implementation scenarios of existing assessment instruments developed domestically and internationally. Through critical analysis of the strengths and limitations of current tools, this review aims to inform the development of culturally adapted assessment instruments and provide empirical foundations for future research initiatives.
[1] | Bray, F., Laversanne, M., Sung, H., Ferlay, J., Siegel, R.L., Soerjomataram, I., et al. (2024) Global Cancer Statistics 2022: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries. CA: A Cancer Journal for Clinicians, 74, 229-263. https://doi.org/10.3322/caac.21834 |
[2] | Zhang, Y., Zhu, M., Wu, X., Meng, Y., Pu, F. and Zhang, M. (2021) Factors Associated with Returning to Work and Work Ability of Colorectal Cancer Survivors. Supportive Care in Cancer, 30, 2349-2357. https://doi.org/10.1007/s00520-021-06638-3 |
[3] | 姚静静, 陈如男, 刘砚燕, 等. 癌症适应概念及其理论的研究进展[J]. 解放军护理杂志, 2012, 29(3): 23-27. |
[4] | Antoni, M.H. (2013) Psychosocial Intervention Effects on Adaptation, Disease Course and Biobehavioral Processes in Cancer. Brain, Behavior, and Immunity, 30, S88-S98. https://doi.org/10.1016/j.bbi.2012.05.009 |
[5] | Zhang, Y., Xian, H., Yang, Y., Zhang, X. and Wang, X. (2019) Relationship between Psychosocial Adaptation and Health‐Related Quality of Life of Patients with Stoma: A Descriptive, Cross‐Sectional Study. Journal of Clinical Nursing, 28, 2880-2888. https://doi.org/10.1111/jocn.14876 |
[6] | Rosenberg, S.M., Dominici, L.S., Gelber, S., Poorvu, P.D., Ruddy, K.J., Wong, J.S., et al. (2020) Association of Breast Cancer Surgery with Quality of Life and Psychosocial Well-Being in Young Breast Cancer Survivors. JAMA Surgery, 155, 1035-1042. https://doi.org/10.1001/jamasurg.2020.3325 |
[7] | Livneh, H. (2021) Psychosocial Adaptation to Chronic Illness and Disability: An Updated and Expanded Conceptual Framework. Rehabilitation Counseling Bulletin, 65, 171-184. https://doi.org/10.1177/00343552211034819 |
[8] | Park, C.L. and Gaffey, A.E. (2007) Relationships between Psychosocial Factors and Health Behavior Change in Cancer Survivors: An Integrative Review. Annals of Behavioral Medicine, 34, 115-134. https://doi.org/10.1007/bf02872667 |
[9] | Steiner, J.F., Cavender, T.A., Nowels, C.T., Beaty, B.L., Bradley, C.J., Fairclough, D.L., et al. (2007) The Impact of Physical and Psychosocial Factors on Work Characteristics after Cancer. Psycho-Oncology, 17, 138-147. https://doi.org/10.1002/pon.1204 |
[10] | Alagizy, H.A., Soltan, M.R., Soliman, S.S., Hegazy, N.N. and Gohar, S.F. (2020) Anxiety, Depression and Perceived Stress among Breast Cancer Patients: Single Institute Experience. Middle East Current Psychiatry, 27, Article No. 29. https://doi.org/10.1186/s43045-020-00036-x |
[11] | Roy, C. (2011) Research Based on the Roy Adaptation Model. Nursing Science Quarterly, 24, 312-320. https://doi.org/10.1177/0894318411419218 |
[12] | Londono, Y. and McMillan, D.E. (2015) Psychosocial Adaptation: An Evolutionary Concept Analysis Exploring a Common Multidisciplinary Language. Journal of Advanced Nursing, 71, 2504-2519. https://doi.org/10.1111/jan.12723 |
[13] | Derogatis, L.R. (1986) The Psychosocial Adjustment to Illness Scale (Pais). Journal of Psychosomatic Research, 30, 77-91. https://doi.org/10.1016/0022-3999(86)90069-3 |
[14] | Rodrigue, J.R., Kanasky, W.F., Jackson, S.I. and Perri, M.G. (2000) The Psychosocial Adjustment to Illness Scale—Self Report: Factor Structure and Item Stability. Psychological Assessment, 12, 409-413. https://doi.org/10.1037/1040-3590.12.4.409 |
[15] | Watson, M., Greer, S., Young, J., Inayat, Q., Burgess, C. and Robertson, B. (1988) Development of a Questionnaire Measure of Adjustment to Cancer: The MAC Scale. Psychological Medicine, 18, 203-209. https://doi.org/10.1017/s0033291700002026 |
[16] | Watson, M., Law, M.G., Santos, M.d., Greer, S., Baruch, J. and Bliss, J. (1994) The Mini-MAC: Further Development of the Mental Adjustment to Cancer Scale. Journal of Psychosocial Oncology, 12, 33-46. https://doi.org/10.1300/j077v12n03_03 |
[17] | Grassi, L., Buda, P., Cavana, L., Annunziata, M.A., Torta, R. and Varetto, A. (2005) Styles of Coping with Cancer: The Italian Version of the Mini-Mental Adjustment to Cancer (Mini-MAC) Scale. Psycho-Oncology, 14, 115-124. https://doi.org/10.1002/pon.826 |
[18] | Anagnostopoulos, F., Kolokotroni, P., Spanea, E. and Chryssochoou, M. (2005) The Mini-Mental Adjustment to Cancer (Mini-MAC) Scale: Construct Validation with a Greek Sample of Breast Cancer Patients. Psycho-Oncology, 15, 79-89. https://doi.org/10.1002/pon.924 |
[19] | Ho, S.M.Y., Kam Fung, W., Chan, C.L.W., Watson, M. and Tsui, Y.K.Y. (2003) Psychometric Properties of the Chinese Version of the Mini‐Mental Adjustment to Cancer (MINI‐MAC) Scale. Psycho-Oncology, 12, 547-556. https://doi.org/10.1002/pon.672 |
[20] | 官锐园, 李虹, 郭记敏, 等. 简明癌症患者心理适应问卷的初步修订及信效度检验[J]. 中国心理卫生杂志, 2008, 22(8): 617-620. |
[21] | Fife, B.L. and Wright, E.R. (2000) The Dimensionality of Stigma: A Comparison of Its Impact on the Self of Persons with HIV/AIDS and Cancer. Journal of Health and Social Behavior, 41, 50-67. https://doi.org/10.2307/2676360 |
[22] | Pan, A., Chung, L., Fife, B.L. and Hsiung, P. (2007) Evaluation of the Psychometrics of the Social Impact Scale: A Measure of Stigmatization. International Journal of Rehabilitation Research, 30, 235-238. https://doi.org/10.1097/mrr.0b013e32829fb3db |
[23] | 李艳清, 钱燕, 严晓玲, 等. 简体中文版社会影响量表的修订及信效度检验[J]. 护理研究, 2024, 38(8): 1336-1342. |
[24] | 程然, 王爱平. 乳腺癌患者心理社会适应问卷的研制[J]. 中国实用护理杂志, 2012, 28(1): 1-5. |
[25] | Simmons, K.L., Smith, J.A. and Maekawa, A. (2009) Development and Psychometric Evaluation of the Ostomy Adjustment Inventory-23. Journal of Wound, Ostomy & Continence Nursing, 36, 69-76. https://doi.org/10.1097/won.0b013e3181919b7d |
[26] | Dellafiore, F., Conte, G., Baroni, I., Pittella, F., Di Pasquale, C., Nania, T., et al. (2019) Ostomy Adjustment Inventory-23 (OAI-23): Development and Testing of the Italian Version. Journal of Wound, Ostomy & Continence Nursing, 46, 38-43. https://doi.org/10.1097/won.0000000000000493 |
[27] | Indrebø, K.L., Andersen, J.R. and Natvig, G.K. (2014) The Ostomy Adjustment Scale: Translation into Norwegian Language with Validation and Reliability Testing. Journal of Wound, Ostomy & Continence Nursing, 41, 357-364. https://doi.org/10.1097/won.0000000000000041 |
[28] | de Gouveia Santos, V.L.C., Nascentes, C.C., de Oliveira Freitas, N., de Oliveira, M.W. and de Castro, D.L.V. (2020) Cultural Adaptation and Validation of the Ostomy Adjustment Inventory-23 for Brazil. Wound Management & Prevention, 66, 32-40. https://doi.org/10.25270/wmp.2020.9.3240 |
[29] | 皋文君, 袁长蓉. 中文版造口患者适应量表的信效度测评[J]. 中华护理杂志, 2011, 46(8): 811-813. |
[30] | 许勤, 程芳, 戴晓冬. 中文版造口者社会心理适应量表的修订及信效度评价[J]. 江苏医药, 2010, 36(14): 1647-1649. |
[31] | Olbrisch, M.E. (1983) Development and Validation of the Ostomy Adjustment Scale. Rehabilitation Psychology, 28, 3-12. https://doi.org/10.1037/h0090996 |
[32] | Zhang, J., Wong, F.K.Y., Zheng, M., Hu, A. and Zhang, H. (2015) Psychometric Evaluation of the Ostomy Adjustment Scale in Chinese Cancer Patients with Colostomies. Cancer Nursing, 38, 395-405. https://doi.org/10.1097/ncc.0000000000000213 |
[33] | Sousa, C., Santos, C. and Graça, L. (2015) Development and Validation of an Elimination Ostomy Adjustment Scale. Revista de Enfermagem Referência, IV, 21-30. https://doi.org/10.12707/riv14021 |
[34] | Yigitbas, C. and Bulut, A. (2024) Exploring Psychological Help-Seeking Behaviors and Stigma Perception among Cancer Patients: A Study on Their Impact on Psychosocial Adjustment. Supportive Care in Cancer, 32, Article No. 694. https://doi.org/10.1007/s00520-024-08870-z |
[35] | 张妍欣, 杨丽, 李家燕, 等. 鼻咽癌病人疾病心理社会适应现状及其影响因素分析[J]. 护理研究, 2022, 36(5): 896-901. |
[36] | 陈会娜, 江佳隆, 刘文秀, 等. 缺血性脑卒中患者疾病心理社会适应水平调查[J]. 护理学杂志, 2021, 36(14): 8-11. |
[37] | Zorba, E., Fasoi, G., Grapsa, E., Zartaloudi, A., Polikandrioti, M., Alikari, V., et al. (2024) Investigation of Social Constraints, Psychosocial Adjustment and Optimism among Dialysis Patients. Clinics and Practice, 14, 1430-1439. https://doi.org/10.3390/clinpract14040115 |
[38] | Zhou, X., Ke, Q., Qiu, W., Li, Y., Wu, Q., Ye, Q., et al. (2024) Psychosocial Adjustment Changes and Related Factors in Young and Middle-Aged Patients with First-Episode Acute Myocardial Infarction: A Longitudinal Study. European Journal of Cardiovascular Nursing, 23, 800-813. https://doi.org/10.1093/eurjcn/zvae065 |
[39] | 肖利允, 吴培香, 安晓华, 等. 心理灵活性和应对方式在COPD患者压力知觉与心理社会适应间的链式中介效应[J]. 护理学报, 2022, 29(16): 55-60. |