Introduction: Japan is not only an aging society, but also a society with a high death rate, and end-of-life care is an urgent issue, as well as support for the lives of the elderly. Advance Care Planning is one of the important decision-making supports for maintaining and improving the quality of life (QOL) and quality of dying and death of patients. Therefore, this study will investigate the implementation status and issues of ACP in primary care facilities in Japan. Methods: A cross-sectional survey study in which 1444 facilities of home care support clinics in Japan were randomly selected. Results: One hundred-eleven responses (7% response rate) were received, with a valid response rate of 100%. Seventy-three facilities (65.7%) were implementing ACP and 38 (34.2%) were not. The support needed for implementation was prioritized as knowledge, information and understanding of the people involved. Reasons for difficulties in implementation included lack of knowledge, skills and experience of medical professionals and lack of understanding of patients and their families. Conclusion: With 37.8% of participants not having received training and 34% not implementing ACP, it cannot be said that implementation of ACP is widespread in primary care domain. Lack of knowledge and skills regarding ACP and difficulty in finding time are issues for the implementation and continuation of ACP, and the need for support in terms of opportunities to attend training and provision of specific information at a practical level was suggested.
References
[1]
National Institute of Population and Social Security Research, Tokyo, Japan (2023, August 31) Population Projections for Japan: 2021-2070 (with Long-Range Population Projections: 2071-2120). Population Research Series No. 347. https://www.ipss.go.jp/pp-zenkoku/j/zenkoku2023/pp2023_ReportALLc.pdf
[2]
The Nippon Foundations (2021) Results of a National Survey on How to Spend the Last Moments of Life. https://www.nippon-foundation.or.jp/who/news/pr/2021/20210329-55543.html
[3]
Ministry of Health, Labor and Welfare (2023) Annual Report on Health and Welfare Statistics. Ministry of Health, Labor and Welfare. https://www.mhlw.go.jp/toukei/youran/indexyk_1_2.html
[4]
The National Council for Palliative Care. Advance Care Planning (2007) A Guide for Health and Social Care Staff.
[5]
Rietjens, J.A.C., Sudore, R.L., Connolly, M., van Delden, J.J., Drickamer, M.A., Droger, M., et al. (2017) Definition and Recommendations for Advance Care Planning: An International Consensus Supported by the European Association for Palliative Care. The Lancet Oncology, 18, e543-e551. https://doi.org/10.1016/s1470-2045(17)30582-x
[6]
Wickson-Griffiths, A., Kaasalainen, S., Ploeg, J. and McAiney, C. (2014) A Review of Advance Care Planning Programs in Long-Term Care Homes: Are They Dementia Friendly? Nursing Research and Practice, 2014, Article ID: 875897. https://doi.org/10.1155/2014/875897
[7]
Sudore, R.L., Heyland, D.K., Lum, H.D., Rietjens, J.A.C., Korfage, I.J., Ritchie, C.S., et al. (2018) Outcomes That Define Successful Advance Care Planning: A Delphi Panel Consensus. Journal of Pain and Symptom Management, 55, 245-255.e8. https://doi.org/10.1016/j.jpainsymman.2017.08.025
[8]
Ministry of Health, Labour and Welfare (2018) Revision “Guidelines for the Medical Decision-Making Process at the Final Stage of Life”. Ministry of Health, Labour and Welfare. https://www.mhlw.go.jp/file/04-Houdouhappyou-10802000-Iseikyoku-Shidouka/0000197701.pdf
[9]
Ministry of Health, Labour and Welfare (2023) Awareness Survey Report Regarding Medical Care and Care at the Final Stage of Life.
[10]
Tomoi, K. (2021) Literature Review on Japanese Views of Life and Death: A Study from the Perspective of Generativity. The Journal of Social Problems, 70, 81-93.
[11]
Suganuma, M., Shizue, N., Toufukuji, M. and Taniguchi, T. (2019) Support Methods and Feelings of Care-Managers Pertaining to Intention for End-of-Life of the Elderly in Need of Care. Journal of Japan Academy of Gerontological Nursing, 23, 59-67. https://doi.org/10.20696/jagn.23.2_59
[12]
Mori, M. and Morita, T. (2020) Evidence for Advance Care Planning: What Do We Know and How Much Do We Know? IGAKU-SHOIN Ltd., 30-33.
[13]
Fried, T.R., Paiva, A.L., Redding, C.A., Iannone, L., O’Leary, J.R., Zenoni, M., et al. (2021) Effect of the STAMP (Sharing and Talking about My Preferences) Intervention on Completing Multiple Advance Care Planning Activities in Ambulatory Care: A Cluster Randomoized Controlled Trial. Annals of Internal Medicine, 174, 1519-1527. https://doi.org/10.7326/m21-1007
[14]
Seiyama, K. (2004) Introduction to Social Research Methods. Yuhikaku Publishing Co., Ltd.
Ishii, K. and Tao, K. (2002) Nursing Research Statistics and Numerical Data. 2nd Edition, IGAKU-SHOIN Ltd.
[17]
Funashima, N. (2007) Challenge to Qualitative Research. 2nd Edition, IGAKU-SHOIN Ltd., 40-79.
[18]
Tsuruwaka, M., Omomo, M. and Sumita, M. (2016) Advance Care Planning Processes and Specific Assistance: Through Analysis of the Timing of the Confirmation of the Intentions of Care Recipients by Visiting Nurses. Journal of Japan Association for Bioethics, 26, 90-99. https://doi.org/10.20593/jabedit.26.1_90
[19]
Hayashi, M. (2023) Medical Decision-Making and Social Work: Focusing on Social Welfare Perspective and Subject Recognition. Human Welfare, 15, 105-112.
[20]
Detering, K.M., Hancock, A.D., Reade, M.C. and Silvester, W. (2010) The Impact of Advance Care Planning on End of Life Care in Elderly Patients: Randomised Controlled Trial. BMJ, 340, c1345. https://doi.org/10.1136/bmj.c1345
[21]
Ministry of Health, Labour and Welfare (2023) Regarding the Medical System Related to Diseases, Business, and Home Mdedical Care. Ministry of Health, Labour and Welfare. https://www.mhlw.go.jp/web/t_doc?dataId=00tc7580&dataType=1&pageNo=1
[22]
Hospital, National Center for Geriatrics and Gerontology. Palliative Care Department ACP Training Package. National Center for Geriatrics and Gerontology. https://www.ncgg.go.jp/hospital/overview/organization/kanwa-care.html
[23]
The Japanese Association for Clinical Research on Advance Care Planning. ACP Study Group Training Session. https://plaza.umin.ac.jp/~JACRA/kensyu/index.html
[24]
Walsh, C.A., Miller, S.J., Smith, C.B., Prigerson, H.G., McFarland, D., Yarborough, S., et al. (2024) Acceptability and Usability of the Planning Advance Care Together (PACT) Website for Improving Patients’ Engagement in Advance Care Planning. PEC Innovation, 4, Article ID: 100245. https://doi.org/10.1016/j.pecinn.2023.100245
[25]
Life Conference Learning Site. Let’s Discuss “What If”, a Life Meeting Starting from Zero. Ministry of Health, Labour and Welfare. https://www.med.kobe-u.ac.jp/jinsei/
[26]
Ethics Committee “Subcommittee on End of Life” (2019) ACP Promotion Recommendations Regarding. The Japan Geriatrics Society. https://www.jpn-geriat-soc.or.jp/press_seminar/pdf/ACP_proposal.pdf
[27]
Kizawa, Y. (2021) 3. Practice and Benefits of Advance Care Planning. Nihon Naika Gakkai Zasshi, 110, 1926-1931. https://doi.org/10.2169/naika.110.1926
[28]
Hamayoshi, M., Goto, S., Matsuoka, C. and Kono, A. (2024) Effects of an “Advance Care Planning” Educational Program for Care Staff in a Nursing Home. Bukkyo University Journal of the Faculty of Health Science, 18, 3-17. https://doi.org/10.50927/HO00180L003