|
|
基于康复志愿者的社会支持系统在乳腺癌患者中的应用与效果
|
Abstract:
乳腺癌患者在带病生存期间需要承受较大的来自身体疾病本身、家庭、社会等方面的压力。这些问题都将影响乳腺癌患者的疾病发展和转归，并且影响到患者的生活，使生命质量有所下降。通过建立乳腺癌康复志愿者团队，定期对康复志愿者进行规范化培训。乳腺癌康复志愿者每周一次进行病房探视，开展同伴支持活动；开设艺术社团，培养兴趣爱好，开展丰富多彩的活动；发挥志愿者的专业特长，对患者进行法律援助和心理疏导；对患者开设就业技能培训和就业推荐。而且将这些进行推广宣传，让更多患者受益。文章旨在通过分析基于乳腺癌康复志愿者的社会支持系统应用成效，以期为乳腺癌全程化管理提供理论依据。
The patients with breast cancer need to bear greater pressure from the physical disease itself, family, society and other aspects during the survival period. These problems will affect the progression and outcome of the disease, and the life of patients, so that the quality of life has declined. Through the establishment of the rehabilitation volunteers with breast cancer, they will receive regular training every period. The rehabilitation volunteers visited the ward once a week to carry out peer support activities. At the same time, they set up art clubs, and cultivate interests and hobbies. They gave full play to the professional expertise of volunteers, provided legal aid and psychological counseling, and provided employment skills training and recommendations for patients. So that these will be promoted to benefit more patients. This study aims to provide a theoretical basis for the whole-process management of breast cancer by analyzing the application effect of social support system based on rehabilitation volunteers with breast cancer.
| [1] | Sung, H., Ferlay, J., Siegel, R.L., Laversanne, M., Soerjomataram, I., Jemal, A., et al. (2021) Global Cancer Statistics 2020: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries. CA: A Cancer Journal for Clinicians, 71, 209-249. https://doi.org/10.3322/caac.21660 |
| [2] | Han, B., Zheng, R., Zeng, H., Wang, S., Sun, K., Chen, R., et al. (2024) Cancer Incidence and Mortality in China, 2022. Journal of the National Cancer Center, 4, 47-53. https://doi.org/10.1016/j.jncc.2024.01.006 |
| [3] | 张士福. 乳腺癌外科治疗演变与展望[J]. 中国妇幼保健, 2010, 25(1): 127-129. |
| [4] | Bray, F., Laversanne, M., Sung, H., Ferlay, J., Siegel, R.L., Soerjomataram, I., et al. (2024) Global Cancer Statistics 2022: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries. CA: A Cancer Journal for Clinicians, 74, 229-263. https://doi.org/10.3322/caac.21834 |
| [5] | Park, J., Chun, M., Bae, S.H., Woo, J., Chon, E. and Kim, H.J. (2024) Factors Influencing Psychological Distress among Breast Cancer Survivors Using Machine Learning Techniques. Scientific Reports, 14, Article No. 15052. https://doi.org/10.1038/s41598-024-65132-y |
| [6] | Akkol‐Solakoglu, S. and Hevey, D. (2023) Internet‐Delivered Cognitive Behavioural Therapy for Depression and Anxiety in Breast Cancer Survivors: Results from a Randomised Controlled Trial. Psycho-Oncology, 32, 446-456. https://doi.org/10.1002/pon.6097 |
| [7] | Cucciniello, L., Miglietta, F., Guarneri, V. and Puglisi, F. (2024) Managing Sexual Health Challenges in Breast Cancer Survivors: A Comprehensive Review. The Breast, 76, Article 103754. https://doi.org/10.1016/j.breast.2024.103754 |
| [8] | Aoki, M., Kuratsune, H., Yamamoto, S., Hirano, T., Hanaeda, K., Nishi, Y., et al. (2023) Autonomic Function Measurements for Evaluating Fatigue and Quality of Life in Patients with Breast Cancer Undergoing Radiation Therapy: A Prospective Longitudinal Study. Radiation Oncology, 18, Article No. 171. https://doi.org/10.1186/s13014-023-02362-w |
| [9] | Mo, Q., Tan, C., Wang, X., Soondrum, T. and Zhang, J. (2022) Optimism and Symptoms of Anxiety and Depression among Chinese Women with Breast Cancer: The Serial Mediating Effect of Perceived Social Support and Benefit Finding. BMC Psychiatry, 22, Article No. 635. https://doi.org/10.1186/s12888-022-04261-y |
| [10] | Caminiti, C., Annunziata, M.A., Di Giulio, P., Isa, L., Mosconi, P., Nanni, M.G., et al. (2023) Psychosocial Impact of Virtual Cancer Care through Technology: A Systematic Review and Meta-Analysis of Randomized Controlled Trials. Cancers, 15, Article 2090. https://doi.org/10.3390/cancers15072090 |
| [11] | WHO (1993) The Development of the WHO Quality of Life Assessment Instrument. |
| [12] | 蒋春儿, 张永芳, 虞亚梅, 等. 基于微信新媒体的乳腺癌全程个案化管理的应用[J]. 中华现代护理杂志, 2016, 22(10): 2684-2687. |
| [13] | 虞亚梅, 张永芳, 石洁文, 等. 全程专业护理个案管理对乳腺癌化疗患者疾病不确定感的影响[J]. 护士进修杂志, 2018, 33(2): 99-101. |
| [14] | Helgeson, V.S. and Tomich, P.L. (2005) Surviving Cancer: A Comparison of 5-Year Disease-Free Breast Cancer Survivors with Healthy Women. Psycho-Oncology, 14, 307-317. https://doi.org/10.1002/pon.848 |
| [15] | Arndt, V., Merx, H., Stürmer, T., Stegmaier, C., Ziegler, H. and Brenner, H. (2004) Age-Specific Detriments to Quality of Life among Breast Cancer Patients One Year after Diagnosis. European Journal of Cancer, 40, 673-680. https://doi.org/10.1016/j.ejca.2003.12.007 |
| [16] | Von Ah, D., Crouch, A.D., Monahan, P.O., Stump, T.E., Unverzagt, F.W., Storey, S., et al. (2021) Association of Cognitive Impairment and Breast Cancer Survivorship on Quality of Life in Younger Breast Cancer Survivors. Journal of Cancer Survivorship, 16, 812-822. https://doi.org/10.1007/s11764-021-01075-x |
| [17] | 黄丽, 罗健. 肿瘤心理治疗[M]. 北京: 人民卫生出版社, 2000: 75-86. |
| [18] | Blumenthal, J.A., Burg, M.M., Barefoot, J., Williams, R.B., Haney, T. and Zimet, G. (1987) Social Support, Type a Behavior, and Coronary Artery Disease. Psychosomatic Medicine, 49, 331-340. https://doi.org/10.1097/00006842-198707000-00002 |
| [19] | 符晗芳, 武闪闪, 刑孟艳. 肝癌介入治疗患者生存质量影响因素[J]. 中华医学杂志, 2024, 43(13): 2460-2465. |
| [20] | Andersen, B.L., Farrar, W.B., Golden-Kreutz, D., Kutz, L.A., MacCallum, R., Courtney, M.E., et al. (1998) Stress and Immune Responses after Surgical Treatment for Regional Breast Cancer. JNCI: Journal of the National Cancer Institute, 90, 30-36. https://doi.org/10.1093/jnci/90.1.30 |
| [21] | 姜乾金. 医学心理学[M]. 北京: 人民卫生出版社, 2002: 73-76. |
| [22] | Felder, T.M., Estrada, R.D., Quinn, J.C., Phelps, K.W., Parker, P.D. and Heiney, S.P. (2017) Expectations and Reality: Perceptions of Support among African American Breast Cancer Survivors. Ethnicity & Health, 24, 737-753. https://doi.org/10.1080/13557858.2017.1373072 |
| [23] | Sørensen, H.L., Schjølberg, T.K., Småstuen, M.C. and Utne, I. (2020) Social Support in Early-Stage Breast Cancer Patients with Fatigue. BMC Women’s Health, 20, Article No. 243. https://doi.org/10.1186/s12905-020-01106-2 |
| [24] | Fekih-Romdhane, F., Riahi, N., Achouri, L., Jahrami, H. and Cheour, M. (2022) Social Support Is Linked to Post-Traumatic Growth among Tunisian Postoperative Breast Cancer Women. Healthcare, 10, Article 1710. https://doi.org/10.3390/healthcare10091710 |
| [25] | Ah, D.V., Kang, D. and Carpenter, J.S. (2007) Stress, Optimism, and Social Support: Impact on Immune Responses in Breast Cancer. Research in Nursing & Health, 30, 72-83. https://doi.org/10.1002/nur.20164 |
| [26] | Baker, F. (1977) The Interface between Professional and Natural Support Systems. Clinical Social Work Journal, 5, 139-148. https://doi.org/10.1007/bf02144239 |
| [27] | Jansen, B.A., Bargon, C.A., Dinger, T.L., van den Goor, M., Postma, E.L., Young-Afat, D.A., et al. (2023) Breast Cancer Patients’ Needs and Perspectives on a One-on-One Peer Support Program: Quantitative and Qualitative Analyses. Supportive Care in Cancer, 31, Article No. 656. https://doi.org/10.1007/s00520-023-08009-6 |
| [28] | 王欣, 焦菲菲, 葛亚敏. 同伴支持健康教育对乳腺癌化疗患者癌因性疲乏、应对方式、生活质量及化疗依从性的影响[J]. 癌症进展, 2022, 20(6): 631-635. |
| [29] | 裘佳佳, 胡雁, 黄嘉玲, 等. 乳腺癌康复互助志愿者病友支持方式的应用及效果[J]. 中华护理杂志, 2008, 43(8): 690-693. |
| [30] | Ahn, J. and Lee, K. (2023) Experiences of Peer Support Activities and the Need for a Metaverse-Based Program in Young Women with Breast Cancer: A Qualitative Study. Asia-Pacific Journal of Oncology Nursing, 10, Article 100253. https://doi.org/10.1016/j.apjon.2023.100253 |
| [31] | Rankin, N., Williams, P., Davis, C. and Girgis, A. (2004) The Use and Acceptability of a One-on-One Peer Support Program for Australian Women with Early Breast Cancer. Patient Education and Counseling, 53, 141-146. https://doi.org/10.1016/s0738-3991(03)00142-3 |
| [32] | Borkman, T.H. (1990) Experiential, Professional and Lay Frames of Reference. In: Powell, T.J., Ed., Working with Self-Help, NASW Press, 3-30. |
| [33] | Rogers, C.R. (1957) The Necessary and Sufficient Conditions of Therapeutic Personality Change. Journal of Consulting Psychology, 21, 95-103. https://doi.org/10.1037/h0045357 |
| [34] | Alex Matthews, B., Baker, F., Hann, D.M., Denniston, M. and Smith, T.G. (2002) Health Status and Life Satisfaction among Breast Cancer Survivor Peer Support Volunteers. Psycho-Oncology, 11, 199-211. https://doi.org/10.1002/pon.550 |
| [35] | Tompkins, C., Scanlon, K., Scott, E., Ream, E., Harding, S. and Armes, J. (2016) Survivorship Care and Support Following Treatment for Breast Cancer: A Multi-Ethnic Comparative Qualitative Study of Women’s Experiences. BMC Health Services Research, 16, Article No. 401. https://doi.org/10.1186/s12913-016-1625-x |
