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Nursing Science 2024
类风湿关节炎患者疲劳体验的质性研究
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Abstract:
目的：深入了解类风湿关节炎患者疲劳体验的真实感受，为制定类风湿关节炎患者疲劳的干预措施提供依据。方法：采用目的抽样法，选取2023年11月~2024年5月在贵州省某三级甲等医院风湿免疫科就诊的15例RA患者为访谈对象，采用Colaizzi 7步分析法分析资料。结果：共提炼了5个主题，即RA患者对疲劳的感知、疲劳的影响、缺乏对疲劳症状的重视、应对方式、渴望中医护理技术。结论：医护人员以及家属应重视RA患者的疲劳主述，积极开展RA相关性疲劳认知的健康教育，纠正患者的思想误区，引导其正确应对疲劳，同时积极开展中医护理技术，有助于缓解RA患者的疲劳症状，改善其预后。
Objective: To deeply understand the real feeling of fatigue experience in patients with rheumatoid arthritis and provide evidence for the formulation of fatigue intervention measures in rheumatoid arthritis patients. Methods: Objective sampling method was used to select 15 RA patients from November 2023 to May 2024 in the rheumatology and immunology department of a level 3A hospital in Guizhou Province as interview subjects, and the data were analyzed by Colaizzi 7-step analysis method. Results: A total of five themes were extracted, namely RA patients’ perception of fatigue, the impact of fatigue, the lack of attention to fatigue symptoms, coping styles, and the desire for traditional Chinese medicine nursing techniques. Conclusion: Medical staff and family members should pay attention to the fatigue main report of RA patients, actively carry out health education on RA-related fatigue cognition, correct the misunderstanding of patients’ thoughts, guide them to correctly cope with fatigue, and actively carry out traditional Chinese medicine nursing technology, which is helpful to alleviate the fatigue symptoms of RA patients and improve their prognosis.
| [1] | 杨琴, 杨进锋, 杨玉涛, 等. 类风湿关节炎药物及手术治疗的研究进展[J]. 中华中医药学刊, 2023, 41(1): 133-136. |
| [2] | Marrelli, K., Cheng, A.J., Brophy, J.D. and Power, G.A. (2018) Perceived versus Performance Fatigability in Patients with Rheumatoid Arthritis. Frontiers in Physiology, 9, Article 1395. https://doi.org/10.3389/fphys.2018.01395 |
| [3] | Scherer, H.U., Häupl, T. and Burmester, G.R. (2020) The Etiology of Rheumatoid Arthritis. Journal of Autoimmunity, 110, Article ID: 102400. https://doi.org/10.1016/j.jaut.2019.102400 |
| [4] | 韩海燕, 沈敬华. 类风湿关节炎发病机制的研究进展[J]. 世界最新医学信息文摘, 2019, 19(93): 66-67, 69. |
| [5] | Huang, J., Fu, X., Chen, X., Li, Z., Huang, Y. and Liang, C. (2021) Promising Therapeutic Targets for Treatment of Rheumatoid Arthritis. Frontiers in Immunology, 12, Article 686155. https://doi.org/10.3389/fimmu.2021.686155 |
| [6] | Pollard, L.C., Choy, E.H., Gonzalez, J., Khoshaba, B. and Scott, D.L. (2006) Fatigue in Rheumatoid Arthritis Reflects Pain, Not Disease Activity. Rheumatology, 45, 885-889. https://doi.org/10.1093/rheumatology/kel021 |
| [7] | Druce, K.L., Aikman, L., Dilleen, M., Burden, A., Szczypa, P. and Basu, N. (2018) Fatigue Independently Predicts Different Work Disability Dimensions in Etanercept-Treated Rheumatoid Arthritis and Ankylosing Spondylitis Patients. Arthritis Research & Therapy, 20, Article No. 96. https://doi.org/10.1186/s13075-018-1598-8 |
| [8] | 张卓莉. 类风湿关节炎新的分类标准诞生[J]. 中华风湿病学杂志, 2010, 14(3): 212-213. |
| [9] | 尚娅萌, 刘芳丽, 李佳欣, 等. 间质性肺疾病患者疲劳管理的研究进展[J]. 中华护理杂志, 2023, 58(15): 1821-1825. |
| [10] | 薛会元, 谢仙萍, 苗华丽, 等. 类风湿关节炎患者疲劳水平与生活质量的相关性分析[J]. 医学综述, 2020, 26(9): 1860-1863. |
| [11] | 刘明. Colaizzi七个步骤在现象学研究资料分析中的应用[J]. 护理学杂志, 2019, 34(11): 90-92. |
| [12] | 王璐, 蒋梦蝶, 谢争, 等. 类风湿关节炎患者疲劳现状及其影响因素分析[J]. 江苏医药, 2022, 48(7): 726-730. |
| [13] | Chmielewski, G., Majewski, M.S., Kuna, J., Mikiewicz, M. and Krajewska-Włodarczyk, M. (2023) Fatigue in Inflammatory Joint Diseases. International Journal of Molecular Sciences, 24, Article 12040. https://doi.org/10.3390/ijms241512040 |
| [14] | Korte, S.M. and Straub, R.H. (2019) Fatigue in Inflammatory Rheumatic Disorders: Pathophysiological Mechanisms. Rheumatology, 58, v35-v50. https://doi.org/10.1093/rheumatology/kez413 |
| [15] | Scott, D., Smith, C. and Kingsley, G. (2005) What Are the Consequences of Early Rheumatoid Arthritis for the Individual? Best Practice & Research Clinical Rheumatology, 19, 117-136. https://doi.org/10.1016/j.berh.2004.08.007 |
| [16] | Stebbings, S., Herbison, P., Doyle, T.C.H., Treharne, G.J. and Highton, J. (2009) A Comparison of Fatigue Correlates in Rheumatoid Arthritis and Osteoarthritis: Disparity in Associations with Disability, Anxiety and Sleep Disturbance. Rheumatology, 49, 361-367. https://doi.org/10.1093/rheumatology/kep367 |
| [17] | Hammam, N., Gamal, R.M., Rashed, A.M., Elfetoh, N.A., Mosad, E. and Khedr, E.M. (2020) Fatigue in Rheumatoid Arthritis Patients: Association with Sleep Quality, Mood Status, and Disease Activity. Reumatología Clínica, 16, 339-344. https://doi.org/10.1016/j.reuma.2018.07.010 |
| [18] | 万媛, 毛莉华, 余婷婷, 等. 类风湿关节炎患者疲劳现况及其与疾病不确定感、心理弹性的相关性[J]. 中国健康心理学杂志, 2022, 30(4): 542-547. |
| [19] | van Tuyl, L.H.D., Sadlonova, M., Hewlett, S., Davis, B., Flurey, C., Goel, N., et al. (2016) The Patient Perspective on Absence of Disease Activity in Rheumatoid Arthritis: A Survey to Identify Key Domains of Patient-Perceived Remission. Annals of the Rheumatic Diseases, 76, 855-861. https://doi.org/10.1136/annrheumdis-2016-209835 |
| [20] | 崔博. 类风湿性关节炎患者自我管理需求的质性研究[D]: [硕士学位论文]. 南京: 南京大学, 2019. |
| [21] | Dar, W.R., Mir, I.A., Siddiq, S., Nadeem, M. and Singh, G. (2022) The Assessment of Fatigue in Rheumatoid Arthritis Patients and Its Impact on Their Quality of Life. Clinics and Practice, 12, 591-598. https://doi.org/10.3390/clinpract12040062 |
| [22] | Hewlett, S., Cockshott, Z., Byron, M., Kitchen, K., Tipler, S., Pope, D., et al. (2005) Patients’ Perceptions of Fatigue in Rheumatoid Arthritis: Overwhelming, Uncontrollable, Ignored. Arthritis Care & Research, 53, 697-702. https://doi.org/10.1002/art.21450 |
| [23] | Santos, E.J.F., Duarte, C., da Silva, J.A.P. and Ferreira, R.J.O. (2019) The Impact of Fatigue in Rheumatoid Arthritis and the Challenges of Its Assessment. Rheumatology, 58, v3-v9. https://doi.org/10.1093/rheumatology/kez351 |
| [24] | 牛红青, 李小峰, 董海原, 等. 类风湿关节炎患者疲乏症状与疾病活动及生活质量关系的研究[J]. 中华风湿病学杂志, 2009, 13(4): 244-247. |
| [25] | Repping-Wuts, H., van Riel, P. and van Achterberg, T. (2008) Fatigue in Patients with Rheumatoid Arthritis: What Is Known and What Is Needed. Rheumatology, 48, 207-209. https://doi.org/10.1093/rheumatology/ken399 |
| [26] | Pope, J.E. (2020) Management of Fatigue in Rheumatoid Arthritis. RMD Open, 6, e001084. https://doi.org/10.1136/rmdopen-2019-001084 |
| [27] | 杨洁群. 中医护理技术在类风湿关节炎中的应用进展[J]. 湖南中医杂志, 2019, 35(10): 189-191. |
| [28] | 周迅, 肖丽娜, 郭璇, 等. 耳穴揿针联合穴位按摩对类风湿关节炎患者疲劳及睡眠质量的影响[J]. 世界最新医学信息文摘(连续型电子期刊), 2023, 23(96): 54-59. |
| [29] | 孙慧敏, 沈中鸣. 耳穴埋豆联合放松疗法辅助治疗类风湿关节炎疲乏疗效观察[J]. 实用临床护理学电子杂志, 2019, 4(23): 50, 57. |
