1~6岁肾病综合征患儿家庭管理干预效果研究
Effective Research of the Family Management Intervention on 1 to 6 Years Old Children with Nephrotic Syndrome

DOI: 10.12677/NS.2022.111010, PP. 52-58

Keywords: 家庭管理干预，肾病综合征，儿童
Family Management Invention, Nephrotic Syndrome, Children

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Abstract:

目的：探讨家庭管理干预在1~6岁肾病综合征患儿中延续性护理的应用效果。方法：选取某三级甲等医院106例1~6岁肾病综合征患儿家庭为研究对象，以2019年1月到12月1~6岁肾病综合征家庭为对照组(n = 53)并采取常规护理，以2020年1月到12月1~6岁肾病住院患儿家庭为干预组(n = 53)并接受为期12周的家庭管理干预，包括讲授、发放资料、同伴交流、HEALS移动视频和微信的使用等方式进行家庭管理干预。结果：干预组中肾病综合征患儿饮食知识水平、疾病管理能力及家庭功能均优于对照组；随访期间未出现感染的患儿，干预组优于对照组(P < 0.05)；两组口服依从性得分差异无统计学意义。结论：家庭管理干预能有效提高肾病综合征患儿主要照顾者疾病管理能力，改善肾病综合征患儿家庭功能，帮助家庭更好地应对疾病，但对口服激素依从性的作用不明显。
Objective: To explore the effect of family management in continuing nursing of children aged 1~6 with nephrotic syndrome. Methods: A total of 53 children and their parents who were admitted to the department of pediatrics from January to December 2019 and agreed to follow-up were set as the control group. And 53 children and their parents who were admitted to the department of pediatrics from January to December 2020 and agreed to follow-up were set as the intervention group. The control group received routine discharge guidance. The intervention group was followed up with systematic family management model, including lectures, giving materials, peer communication, the use of video by HEALS and WeChat. Results: The caregivers in intervention group had a higher level of dietary knowledge, the disease management capability and the family function than those in the control group. The rate of infection in the intervention group is higher than in the control group (P < 0.05). There was no difference in medication compliance. Conclusion: Family management invention plays an active role in promoting the mastery of dietary knowledge of parents of children with nephrotic syndrome, effectively improving family management ability.

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