Background: Idiopathic Pulmonary Fibrosis (IPF) is a chronic, progressive, and
life-limiting condition. It has no cure hence it is vital to establish
effective methods of improving the quality of remaining life in these patients.
One of the key components of improving quality of life is pulmonary
rehabilitation. However little research has been conducted to understand the
perspectives and lived experience of people with IPF on pulmonary
rehabilitation. Hence, we aim to fill this gap in the existing literature. Methods: We sought to understand how patients coped
with pulmonary rehabilitation. A patient-centred approach was used to
explore the physical and psychological impact of pulmonary rehabilitation.
Semi-structured interviews were conducted by experienced academics. Interviews
used a topic guide but mostly led by the participants. An inductive thematic
approach was used to analyse data, allowing us to identify common themes in the
participants’ experiences. Results: Of fifty invited participants, ten
took part in the study (aged 53 - 81 years). Inductive analysis of interviews
identified seven second-order themes and eleven first-order themes, represented
by two General Dimensions: “motivation” and “Advantages and disadvantages
References
[1]
Senanayake, S.P., Harrison, K., Hilldrup, S. and Lewis, M. (2020) Influence of Rehabilitation on Oxygen Uptake Kinetics during High Intensity Exercise in Patients with Idiopathic Pulmonary Fibrosis. Open Journal of Respiratory Diseases, 10, 59-74. https://doi.org/10.4236/ojrd.2020.104007
[2]
Travis, W.D., Costabel, U., Hansell, D.M., King, T.E., Lynch, D.A., Nicholson, A.G., et al. (2013) An Official American Thoracic Society/European Respiratory Society statement: Update of the International Multidisciplinary Classification of the Idiopathic Interstitial Pneumonias. American Journal of Respiratory and Critical Care Medicine, 188, 733-748. https://doi.org/10.1164/rccm.201308-1483ST
[3]
Gribbin, J. (2006) Incidence and Mortality of Idiopathic Pulmonary Fibrosis and Sarcoidosis in the UK. Thorax, 61, 980-985. https://doi.org/10.1136/thx.2006.062836
[4]
Decramer, M., Janssens, W. and Miravitlles, M. (2012) Chronic Obstructive Pulmonary Disease. The Lancet, 379, 1341-1351. https://doi.org/10.1016/S0140-6736(11)60968-9
[5]
Burns, N. (2012) COPD and Pulmonary Rehabilitation. Australian Family Physician, 41, 133-141.
[6]
Bajwah, S., Higginson, I.J., Ross, J.R., Wells, A.U., Birring, S.S., Riley, J., et al. (2013) The Palliative Care Needs for Fibrotic Interstitial Lung Disease: A Qualitative Study of Patients, Informal Caregivers and Health Professionals. Palliative Medicine, 27, 869-876. https://doi.org/10.1177/0269216313497226
[7]
Bolton, C.E. (2013) British Thoracic Society Guideline on Pulmonary Rehabilitation in Adults: Accredited by NICE. Thorax, 68, ii1-ii30. https://doi.org/10.1136/thoraxjnl-2013-203808
[8]
Coultas, D.B., Zumwalt, R.E., Black, W.C. and Sobonya, R.E. (1994) The Epidemiology of Interstitial Lung Diseases. American Journal of Respiratory and Critical Care Medicine, 150, 967-972. https://doi.org/10.1164/ajrccm.150.4.7921471
[9]
Rubin, H.J. and Rubin, I.S. (2011) Qualitative Interviewing: The art of hearing data. SAGE.
[10]
Braun, V., Clarke, V., Braun, V. and Clarke, V. (2006) Using Thematic Analysis in Psychology. Qualitative Research in Psychology, 3, 77-101. https://doi.org/10.1191/1478088706qp063oa
[11]
Miles, M.B. and Huberman, A.M. (1994) Qualitative Data Analysis: An Expanded Sourcebook. SAGE, 18-26.
[12]
Visscher, D.W. (2006) Histologic Spectrum of Idiopathic Interstitial Pneumonias. Proceedings of the American Thoracic Society, 3, 322-329. https://doi.org/10.1513/pats.200602-019TK
[13]
King, T.E., Pardo, A. and Selman, M. (2011) Idiopathic Pulmonary Fibrosis. The Lancet, 378, 1949-1961. https://doi.org/10.1016/S0140-6736(11)60052-4
[14]
Churg, A. (2007) Acute Exacerbation (Acute Lung Injury of Unknown Cause) in UIP and Other Forms of Fibrotic Interstitial Pneumonias. The American Journal of Surgical Pathology, 31, 277-284. https://doi.org/10.1097/01.pas.0000213341.70852.9d
[15]
The National Institute for Health and Care Excellence (2017) Idiopathic Pulmonary Fibrosis in Adults: Diagnosis and Management—Guidance and Guidelines. https://www.nice.org.uk/guidance/cg163 .
[16]
Ryan, R.M. and Deci, E.L. (2000) Self-Determination Theory and the Facilitation of Intrinsic Motivation, Social Development, and Well-Being. American Psychologist, 55, 68-78. https://doi.org/10.1037/0003-066X.55.1.68
