Utilizing the China Health and Retirement Longitudinal Study (CHARLS) to Understand the Aging of People Living in the Community with Intellectual and Developmental Disabilities
There remain challenges in understanding the aging lives of people with intellectual and developmental disabilities. Method: A cross-sectional comparison of people with and without I/DD was created using China Health and Retirement Longitudinal Study (CHARLS). A definition of I/DD was established, three samples were created: those with an assigned/described intellectual and developmental disability prior to age 22 years; those with similar impairments at and after age 22 years; and those in the population without an assigned/described impairment. Findings: Those with I/DD appeared to have greater health needs on initial analysis. People with an impairment similar to I/DD but occurring after age 22 years had the same or greater needs in subsequent analyses. Both groups had greater needs than those with no identified disability. Discussion: There must be greater efforts to discover those with I/DD who are already in existing datasets, greater attention to the full range of lives led by people with I/DD and inclusion of data from a broader range of countries.
References
[1]
Bigby, C., McCallion, P. and McCarron, M. (2014) Serving an Elderly Population. In: Agran, M., Brown, F., Hughes, C., Quirk, C. and Ryndak, D., Eds., Equality & Full Participation for Individuals with Severe Disabilities: A Vision for the Future, Paul H. Brookes, Baltimore, 319-348.
[2]
Kwok, H.W., Cui, Y. and Li, J. (2011) Perspectives of Intellectual Disability in the People’s Republic of China: Epidemiology, Policy, Services for Children and Adults. Current Opinion in Psychiatry, 24, 408-412.
https://doi.org/10.1097/YCO.0b013e328348810c
[3]
Lecomte, J. and Mercier, C. (2008) The WHO Atlas on Global Resources for Persons with Intellectual Disabilities: A Right to Health Perspective. Salud Publica de Mexico, 50, S160-S166. https://doi.org/10.1590/S0036-36342008000800009
[4]
McCallion, P. and McCarron, M. (2015) People with Disabilities Entering the Third Age. In: McConkey, R., Gilligan, R. and Iriarte, E.G., Eds., Disability in a Global Age: A Human Rights Based Approach, Palgrave McMillan, London, 217-230.
[5]
Njenga, F. (2009) Perspectives of Intellectual Disability in Africa: Epidemiology and Policy Services for Children and Adults. Current Opinion in Psychiatry, 22, 457-461.
https://doi.org/10.1097/YCO.0b013e32832e63a1
[6]
Perkins, E.A. and Moran, J.A. (2010) Aging Adults with Intellectual Disabilities. JAMA: Journal of the American Medical Association, 304, 91-92.
https://doi.org/10.1001/jama.2010.906
[7]
Temple, V.A. and Stanish, H.I. (2008) Physical Activity and Persons with Intellectual Disability: Some Considerations for Latin America. Salud Pública de México, 50, s185-s193. https://doi.org/10.1590/S0036-36342008000800012
[8]
McCallion, P., Ferretti, L., Beange, H. and McCarron, M. (2019) Epidemiological Issues. In: Prasher, V.P. and Janicki, M.P., Eds., Physical Health of Adults with Intellectual Disabilities, Wiley, London, 9-26.
https://doi.org/10.1007/978-3-319-90083-4_2
[9]
Haveman, M., Heller, T., Lee, L., Maaskant, M., Shooshtari, S. and Strydom, A. (2010) Major Health Risks in Aging Persons with Intellectual Disabilities: An Overview of Recent Studies. Journal of Policy and Practice in Intellectual Disabilities, 7, 59-69. https://doi.org/10.1111/j.1741-1130.2010.00248.x
[10]
McCarron, M., Swinburne, J., Burke, E., McGlinchey, E., Carroll, R. and McCallion P. (2013) Patterns of Multimorbidity in an Older Population of Persons with an Intellectual Disability: Results from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA). Research in Developmental Disabilities, 34, 521-527. https://doi.org/10.1016/j.ridd.2012.07.029
[11]
Tyler, C.V., Schramm, S.C., Karafa, M., Tang, A.S. and Jain, A.K. (2010) Electronic Health Record Analysis of the Primary Care of Adults with Intellectual and Other Developmental Disabilities. Journal of Policy and Practice in Intellectual Disabilities, 7, 204-210. https://doi.org/10.1111/j.1741-1130.2010.00266.x
[12]
Raghavan, R. and Pater, P. (2010) Ethical Issues of Psychotropic Medication for People with Intellectual Disabilities. Advances in Mental Health and Intellectual Disabilities, 4, 34-38. https://doi.org/10.5042/amhid.2010.0541
[13]
O’Dwyer, M., Pekler, J., McCallion, P., McCarron, M. and Henman, M. (2016) Factors Associated with Polypharmacy and Excessive Polypharmacy in Older People with Intellectual Disability Differ from the General Population; a Cross-Sectional Observational Nationwide Study. BMJ Open, 6, e010505.
https://doi.org/10.1136/bmjopen-2015-010505
[14]
MacGiolla Phadraig, C., McCarron, M., Burke, E., Cleary, E., McGlinchey, E., McCallion, P. and Nunn, J. (2015) Total Tooth Loss and Complete Denture Use in Older Adults with Intellectual Disabilities in Ireland. Journal of Public Health Dentistry, 75, 101-108. https://doi.org/10.1111/jphd.12077
[15]
Hughes-McCormack, L.A., Rydzewska, E., Henderson, A., MacIntyre, C., Rinoul, J. and Cooper, S.-A. (2018) Prevalence and General Health Status of People with Intellectual Disabilities in Scotland: A Total Population Study. Journal of Epidemiology and Community Health, 72, 78-85. https://doi.org/10.1136/jech-2017-209748
[16]
Mann, J., Zhou, H., McDermott, S. and Poston, M.B. (2006) Healthy Behavior Change of Adults with Mental Retardation: Attendance in a Health Promotion Program. American Journal on Mental Retardation, 111, 62-73.
https://doi.org/10.1352/0895-8017(2006)111[62:HBCOAW]2.0.CO;2
[17]
Jokinen, N., Janicki, M.P., Keller, S., McCallion, P. and Force, L.T. (2013) Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia. Journal of Policy & Practice in Intellectual Disabilities, 10, 1-24. https://doi.org/10.1111/jppi.12016
[18]
McCarron, M., Carroll, R. and McCallion, P. (2017) A Prospective 20 Year Longitudinal Follow-Up of Dementia in Persons with Down syndrome. Journal of Intellectual Disability Research, 61, 843-852. https://doi.org/10.1111/jir.12390
[19]
Coppus, A.M., Schuur, M., Vergeer, J,, Janssens, A.C., Oostra, B.A., Verbeek, M.M. and van Duijn, C.M. (2012) Plasma β Amyloid and the Risk of Alzheimer’s Disease in Down Syndrome. Neurobiology of Aging, 33, 1988-1994.
https://doi.org/10.1016/j.neurobiolaging.2011.08.007
[20]
Burke, E., McCallion, P., Carroll, R., Walsh, J.B. and McCarron, M. (2017) An Exploration of the Bone Health of Older Adults with an Intellectual Disability in Ireland. Journal of Intellectual Disability Research, 61, 99-114.
https://doi.org/10.1111/jir.12273
[21]
Strax, T.E., Luciano, L., Dunn, A.M. and Quevedo, J.P. (2010) Aging and Developmental Disabilities. Physical Medicine and Rehabilitation Clinics of North America, 21, 419-427. https://doi.org/10.1016/j.pmr.2009.12.009
[22]
Schalock, R.L., Borthwick-Duffy, S.A. and Bradley, M. (2010) Intellectual Disability: Definition, Classification, and Systems of Supports. 11th Edition, American Association on Intellectual and Developmental Disabilities, Washington DC.
[23]
Developmental Disabilities Assistance and Bill of Rights Act (2000) The Administration on Developmental Disabilities: The Developmental Disabilities Assistance and Bill of Rights Act of 2000.
[24]
Van Bakel, M., Einarsson, I., Arnaud, C., Craig, S., Michelsen, S.I., Pildava, S., Uldall, P. and Cans, C. (2013) Monitoring the Prevalence of Severe Intellectual Disability in Children across Europe: Feasibility of a Common Database. Developmental Medicine & Child Neurology, 56, 361-369.
[25]
McCarron, M., Carroll, R., Kelly, C. and McCallion, P. (2014) To Understand Differing Patterns of Age of Death by Gender and Level of ID, for People with ID in Ireland. Journal of Applied Research in Intellectual Disabilities, 27, 314-324.
[26]
Zhao, Y., Hu, Y., Smith, J.P., Strauss, J. and Yang, G. (2014) Cohort Profile: The China Health and Retirement Longitudinal Study (CHARLS). International Journal of Epidemiology, 43, 61-68. https://doi.org/10.1093/ije/dys203
[27]
Thoemmes, F. (2012) Propensity Score Matching in SPSS [Online].
[28]
McCallion, P., Jokinen, N. and Janicki, M.P. (2017) Aging. In: Wehmeyer, M.L., Brown, I., Percey, M., Shogren, K.A. and Fung, M., Eds., A Comprehensive Guide to Intellectual and Developmental Disabilities, Paul Brookes Press, Baltimore, 639-654.
[29]
Salvador-Carulla, L., Reed, G.M., Vaez-Azizi, L.M., Cooper, S.A., Martinez-Leal, R., Bertelli, M., Adnams, C., Cooray, S., Deb, S., Akoury-Dirani, L., Girimaji, S.C., Katz, G., Kwok, H., Luckasson, R., Simeonsson, R., Walsh, C., Munir, K. and Saxena, S. (2011) Intellectual Developmental Disorders: Towards a New Name, Definition and Framework for “Mental Retardation/Intellectual Disability” in ICD-11. World Psychiatry, 10, 175-180. https://doi.org/10.1002/j.2051-5545.2011.tb00045.x
[30]
Friedman, D.J., Parrish, R.G. and Fox, M.H. (2018) A Review of Global Literature on Using Administrative Data to Estimate Prevalence of Intellectual and Developmental Disabilities. Journal of Policy and Practice in Intellectual Disabilities, 15, 43-62. https://doi.org/10.1111/jppi.12220
[31]
Krahn, G.L. and Fox, M.H. (2014) Health Disparities of Adults with Intellectual Disabilities: What Do We Know? What Do We Do? Journal of Applied Research in Intellectual Disability, 27, 431-446. https://doi.org/10.1111/jar.12067
