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-  2018 

Returning research results: caregivers’ reactions following computerized cognitive training among childhood cancer survivors

DOI: 10.1093/nop/npx029

Keywords: acute lymphoblastic leukemia, brain tumor, pediatric, research results

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Abstract:

Few researchers routinely disseminate results to participants; however, there is increasing acknowledgment that benefits of returning results outweigh potential risks. Our objective was to determine whether use of specific guidelines developed by the Children’s Oncology Group (COG) when preparing a lay summary would aid in understanding results. Specifically, to determine if caregivers of childhood cancer survivors found a lay summary comprehensive, easy to understand, and helpful following participation in a computerized cognitive training program

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