全部 标题 作者
关键词 摘要

OALib Journal期刊
ISSN: 2333-9721
费用:99美元

查看量下载量

相关文章

更多...
Societies  2013 

The Meaning of Health, Well-Being, and Quality of Life Perceived by Roma People in West Sweden

DOI: 10.3390/soc3020243

Keywords: Roma people, health perceptions, quality of life, well-being, qualitative research

Full-Text   Cite this paper   Add to My Lib

Abstract:

Many Roma people in Sweden are on the margins of society and face problems of social exclusion, institutional discrimination, low education, unemployment, and poor health. The aim is to describe how a group of Roma people, in West Sweden, understand health, well-being, and quality of life within the Roma context, and how they cope with their life-situation. Data consisted of qualitative interviews. The data were analyzed qualitatively using a phenomenological hermeneutic approach. The respondents mainly understood the concept of Health as “being healthy” and “feeling good”. Elements that were crucial part of the respondents’ health perception were being employed, having an education, social support from family and friends, freedom and security, and the extent of involvement in society. The results indicate that the respondents perceive their health and life situation as good, despite of their marginalized situation and discrimination.

References

[1]  Hancock, I. Danger! Educated Gypsy: Selected Essays; University of Hertfordshire Press: Hertfordshire, UK, 2010.
[2]  SOU. Romers r?tt—En strategi f?r romer i Sverige (in Swedish). Statens offentliga utredningar SOU 2010:55; Elanders: Stockholm, Sweden, 2010.
[3]  European Commission. The Situation of Roma in an Enlarged European Union; Directorate-General for Employment and Social Affairs: Luxembourg, Luxembourg, 2004.
[4]  Montesino Parra, N. Zigenarfr?gan: Intervention och Romantik (in Swedish). Ph.D. Thesis, University of Lund, Lund, Sweden, 2002.
[5]  Cederberg, I. F?dd F?rd?md, Romerna—Ett Europeiskt Dilemma (in Swedish); Leopard f?rlag: Stockholm, Sweden, 2010.
[6]  Montesino, N. Romer i Svensk Myndighetspolitik–ett Historiskt Perspektiv (in Swedish); Meddelanden fr?n Socialh?gskolan; University of Lund: Lund, Sweden, 2010.
[7]  Palosuo, L. Inventering av forskningen om romer i Sverige (in Swedish); University of Uppsala: Uppsala, Sweden, 2009.
[8]  Palmroth, K.; Hermansson, H.-E. Socialt medborgarskap (in Swedish). Invandr. Minor. 2006, 3, 12–15.
[9]  European Council. Framework Convention for the Protection of National Minorities and Explanatory Report; European Council: Strasbourg, France, 1995.
[10]  DO. Discrimination against Romanies in Sweden—A Report on the DO Project in the Years of 2002 and 2003 on Counteracting and Forestalling Ethnic Discrimination against Romanies. Reports of the Swedish Equality Ombudsman; Stockholm, Sweden, 2003.
[11]  WHO. Health Promotion Glossary; World Health Organization: Geneva, Switzerland, 1998.
[12]  Popay, J.; Williams, G.; Thomas, C.; Gatrell, T. Theorising inequalities in health: The place of lay knowledge. Sociol. Health Illness 1998, 20, 619–644.
[13]  Popay, J.; Escorel, S.; Hernández, M.; Johnston, H.; Mathieson, J.; Rispel, L. Understanding and tackling social exclusion: final report to the WHO Commission on Social Determinants of Health. Report of the Social Exclusion Knowledge Network; World Health Organization: Geneva, Switzerland, 2008.
[14]  Pierson, J. Tackling Social Exclusion, 2nd ed.; Routledge: London, UK and New York, NY, USA, 2010.
[15]  Wiking, E.; Johansson, S.-E.; Sundquist, J. Ethnicity, acculturation, and self reported health. A population based study among immigrants from Poland, Turkey, and Iran in Sweden. J. Epidemiol. Community Health 2004, 574–582.
[16]  Williams, D.R.; John, D.A.; Oyserman, D.; Sonnega, J.; Mohammed, S.A.; Jackson, J.S. Research on discrimination and health: An exploratory study of unresolved conceptual and measurement issues. J. Inf. 2012, 102, 975–978.
[17]  Pascoe, E.A.; Smart Richman, L. Perceived discrimination and health: A meta-analytic review. Psychol. Bull. 2009, 135, 531–554, doi:10.1037/a0016059.
[18]  Harris, R.; Martin, T.; Jeffreys, M.; Waldegrave, K.; Karlsen, S.; Nazroo, J. Racism and health: The relationship between experience of racial discrimination and health in New Zealand. Soc. Sci. Med. 2006, 63, 1428–1441, doi:10.1016/j.socscimed.2006.04.009.
[19]  Zeman, C.L.; Depken, D.E.; Senchina, D.S. Roma health issues: A review of the literature and discussion. Ethn. Health 2003, 8, 223–249, doi:10.1080/1355785032000136434.
[20]  Braham, M. The Untouchables: A Survey of the Roma People of Central and Eastern Europe: A Report to the Office of the United Nations High Commissioner for Refugees; Office of the United Nations High Commissioner for Refugees (UNHCR): Geneva, Switzerland, 1993.
[21]  Van Cleemput, P.; Parry, G. Health status of gypsy travellers. J. Public Health 2001, 23, 129–134, doi:10.1093/pubmed/23.2.129.
[22]  Parry, G.; Van Gleemput, P.; Peters, J.; Walters, S.; Thomas, K.; Cooper, C. Health status of gypsies and travellers in England. J. Epidemiol. Community Health 2007, 61, 198–204, doi:10.1136/jech.2006.045997.
[23]  Hussey, R. Equal opportunities for Gypsies. Public Health 1989, 103, 79, doi:10.1016/S0033-3506(89)80020-4.
[24]  Trnka, L.; Hejdova, E. Surveillance of tuberculosis in the Czech Republic in 1991. Casopís lékar?? c?eskych 1993, 132, 401.
[25]  Thomas, J.D. Gypsies and American medical care. Ann. Internal Med. 1985, 102, 842.
[26]  Thomas, J.D.; Doucette, M.M.; Thomas, C.C.; Storckle, J.D. lifestyle, and consanguinity in 58 American Gypsies. Lancet. 1987, 330, 377–379.
[27]  Sutherland, A. Gypsies and health care. West. J. Med. 1992, 157, 276.
[28]  Bodner, A.; Leininger, M. Transcultural nursing care values, beliefs, and practices of American (USA) Gypsies. J. Transcult. Nurs. 1992, 4, 17–28, doi:10.1177/104365969200400104.
[29]  Braga, C. Transcultural nursing and beliefs: Values and practices of the Gypsy population. Rev. Escol. Enferm. USP 1997, 31, 498–516.
[30]  Binnie, G.A. The health of Gypsies: Problem of caring for travellers is British, not just European. Br. Med. J. 1998, 316, 1824–1825, doi:10.1136/bmj.316.7147.1824a.
[31]  Zonda, T.; Lester, D. Suicide among Hungarian gypsies. Acta Psychiatr. Scand. 1990, 82, 381–382, doi:10.1111/j.1600-0447.1990.tb01405.x.
[32]  Semerdjieva, M.; Mateva, N.; Dimitrov, I. Sexual culture of gypsy population. Folia Med. 1998, 40, 72–75.
[33]  Feder, G.S.; Vaclavik, T.; Streetly, A. Traveller Gypsies and childhood immunization: A study in east London. Br. J. General Pract. 1993, 43, 281–284.
[34]  Miszei, K.; Slay, B.; Mihailov, D.; O’Higgins, N.; Ivanov, A. Avoiding the Dependency Trap; UNDP: Bratislava, Slovakia, 2003.
[35]  FSG (Fundación Secretariado Gitano). Health and the Roma Community, Analysis of the Situation in Europe; FSG: Madrid, Spain, 2009.
[36]  The Swedish National Institute of Public Health (Folkh?lsoinstitutet). Hur m?r Sveriges nationella minoriteter (in Swedish)?; Folkh?lsoinstitutet: Stockholm, Sweden, 2010.
[37]  Crondahl, K.; Eklund, L. Perceptions on health, well-being and quality of life of Balkan Roma adolescents in West Sweden. Romani Stud. 2012, 22, 153–174, doi:10.3828/rs.2012.9.
[38]  Hassler, S.; Eklund, L. Sense of coherence and self-reported health among Roma people in Sweden–a pilot study. Int. J. Circumpolar Health 2012, 71, 18438.
[39]  Rodell Olgac, C. Den Romska Minoriteten i Majoritetssamh?llets Skola: Fr?n Hot Till M?jlighet (in Swedish). Ph.D. Thesis, University of Stockholm, Stockholm, Sweden, 2006.
[40]  Eklund, L. Empowerment och delaktighet hos romer i V?stsverige (in Swedish). Svenska ESF r?det: G?teborg, Sweden, 2010. Available online: http://www.esf.se/sv/Projektbank/Behallare-for-projekt/Vastsverige/Empowerment-och-delaktighet-hos-romer-i-Vastsverige-genomforande/ (accessed on 3 June 2013).
[41]  Berntsson, L. Health and Well-being of Children in the Five Nordic Countries in 1984 and 1996; Nordic School of Public Health: G?teborg, Sweden, 2000.
[42]  Antonovsky, A. Health, Stress, and Coping; Jossey-Bass: San Francisco, CA, USA, 1979.
[43]  WHO. Ottawa Charter for Health Promotion. World Health Organisation: Geneva, Switzerland, 1986.
[44]  Williams, L.; Labonte, R. Changing health determinants through community action: Power, participation and policy. Promot. Educ. 2003, 65–71.
[45]  Huber, M.; Knottnerus, A.; van der Horst, H.; Jadad, A.R.; Kromhout, D.; Leonard, B.; Lorig, K.; Loureiro, M.I.; van der Meer, J.W.M.; Schnabel, P.; et al. How should we define health? Br. Med. J. 2011, 343, d4163, doi:10.1136/bmj.d4163.
[46]  Eriksson, M. Unravelling the Mystery of Salutogenesis: The Evidence Base of the Salutogenic Research as Measured by Antonovsky’s Sense of Coherence Scale; Folkh?lsan Research Centre: Turku, Fenland, 2007.
[47]  Lindstr?m, B. The Essence of Existence: On the Quality of Life of Children in the Nordic Countries—Theory and Practice in Public Health; Nordic School of Public Health: G?teborg, Sweden, 1994.
[48]  Diener, E.; Emmons, R.A.; Larsen, R.J.; Griffin, S. The satisfaction with life scale. J. Personal. Assess. 1985, 49, 71–75, doi:10.1207/s15327752jpa4901_13.
[49]  Eid, M.; Diener, E. Global judgments of subjective well-being: Situational variability and long-term stability. Soc. Indic. Res. 2004, 65, 245–277, doi:10.1023/B:SOCI.0000003801.89195.bc.
[50]  Diener, E.; Emmons, R.A. The independence of positive and negative affect. J. Personal. Soc. Psychol. 1984, 47, 1105, doi:10.1037/0022-3514.47.5.1105.
[51]  Gasper, D. Understanding the diversity of conceptions of well-being and quality of life. J. Socio-Econ. 2010, 39, 351–360, doi:10.1016/j.socec.2009.11.006.
[52]  Andrews, F.M.; Withey, S.B. Social Indicators of Well-being: Americans’ Perceptions of Life Quality; Plenum Press: New York, NY, USA, 1976.
[53]  Pavot, W.; Diener, E. Review of the satisfaction with life scale. Psychol. Assess. 1993, 5, 164, doi:10.1037/1040-3590.5.2.164.
[54]  Shin, D.C.; Johnson, D.M. Avowed happiness as an overall assessment of the quality of life. Soc. Indic. Res. 1978, 5, 475–492, doi:10.1007/BF00352944.
[55]  Diener, E. Subjective well-being: The science of happiness and a proposal for a national index. Am. Psychol. 2000, 55, 34–43, doi:10.1037/0003-066X.55.1.34.
[56]  Albrecht, G.L.; Devlieger, P.J. The disability paradox: High quality of life against all odds. Soc. Sci. Med. 1999, 48, 977–988, doi:10.1016/S0277-9536(98)00411-0.
[57]  Biernacki, P.; Waldorf, D. Snowball sampling: Problems and techniques of chain referral sampling. Sociol. Methods Res. 1981, 10, 141–163.
[58]  Bryman, A. Social Research Methods; OUP: Oxford, UK, 2012.
[59]  Lindseth, A.; Norberg, A. A phenomenological hermeneutical method for researching lived experience. Scand. J. Caring Sci. 2004, 18, 145–153, doi:10.1111/j.1471-6712.2004.00258.x.
[60]  Ricoeur, P. Interpretation Theory: Discourse and the Surplus of Meaning; TCU Press: Fort Worth, TX, USA, 1976.
[61]  Von Zweck, C.; Paterson, M.; Pentland, W. The use of hermeneutics in a mixed methods design. Qual. Rep. 2008, 13, 116–134.
[62]  Van Cleemput, P.; Parry, G.; Thomas, K.; Peters, J.; Cooper, C. Health-related beliefs and experiences of Gypsies and Travellers: A qualitative study. J. Epidemiol. Community Health 2007, 61, 205–210, doi:10.1136/jech.2006.046078.
[63]  SOU. Integrationens svarta bok. Agenda f?r j?mlikhet och social sammanh?llning (in Swedish). Statens offentliga utredningar SOU 2006:79; Fritzes: Stockholm, Sweden, 2006.
[64]  Williams, D.R.; Neighbors, H.W.; Jackson, J.S. Racial/ethnic discrimination and health: Findings from community studies. J. Inf. 2003, 93, 200–208.

Full-Text

Contact Us

service@oalib.com

QQ:3279437679

WhatsApp +8615387084133