Improved diagnosis of coeliac disease has increased incidence and therefore burden on the health care system. There are no quality outcome measures (QOM) in use nationally to assess hospital management of this condition. This study applied QOM devised by the East of England paediatric gastroenterology network to 99 patients reviewed at two tertiary hospitals in the Network, to assess the quality of care provided by nurse led and doctor led care models. The average performance across all QOM was 96.2% at Addenbrooke’s Hospital (AH), and 98.7% at Norfolk and Norwich Hospital (NNUH), whilst 95% ( n = 18) of QOM were met. Patient satisfaction was high at both sites (uptake of questionnaire 53 of 99 patients in the study). The study showed a comparably high level of care delivered by both a nurse and doctor led service. Our quality assessment tools could be applied in the future by other centres to measure standards of care.
Fasano, A.; Berti, I.; Gerarduzzi, T.; Not, T.; Colletti, R.B.; Drago, S.; Elitsur, Y.; Green, P.H.; Guandalini, S.; Hill, I.D.; et al. Prevalence of celiac disease in at-risk and not-at-risk groups in the United States: A large multicenter study. Arch. Intern. Med. 2003, 163, 286–292, doi:10.1001/archinte.163.3.286.
[3]
Kang, J.Y.; Kang, A.H.; Green, A.; Gwee, K.A.; Ho, K.Y. Systematic review: Worldwide variation in the frequency of coeliac disease and changes over time. Aliment. Pharmacol. Ther. 2013, 38, 226–245, doi:10.1111/apt.12373.
[4]
Roshan, B.; Leffler, D.A.; Jamma, S.; Dennis, M.; Sheth, S.; Falchuk, K.; Najarian, R.; Goldsmith, J.; Tariq, S.; Schuppan, D.; et al. The incidence and clinical spectrum of refractory celiac disease in a North American referral center. Am. J. Gastroenterol. 2011, 106, 923–928, doi:10.1038/ajg.2011.104.
[5]
National Institute for Health and Clinical Excellence. Coeliac Disease: Recognition and Assessment of Coeliac Disease. (2009). Available online: http://www.nice.org.uk/CG86 (accessed on 1 August 2013).
[6]
Stang, A.S.; Straus, S.E.; Crotts, J.; Johnson, D.W.; Guttmann, A. Quality indicators for high acuity pediatric conditions. Pediatrics 2013, 132, 752–762, doi:10.1542/peds.2013-0854.
[7]
Gurvitz, M.; Marelli, A.; Mangione-Smith, R.; Jenkins, K. Building quality indicators to improve care for adults with congenital heart disease. J. Am. Coll. Cardiol. 2013, doi:10.1016/j.jacc.2013.07.099.
[8]
Llanwarne, N.R.; Abel, G.A.; Elliott, M.N.; Paddison, C.A.; Lyratzopoulos, G.; Campbell, J.L.; Roland, M. Relationship between clinical quality and patient experience: Analysis of data from the english quality and outcomes framework and the National GP Patient Survey. Ann. Fam. Med. 2013, 11, 467–472, doi:10.1370/afm.1514.
[9]
Department of Health (UK). Governance Arrangements for Research Ethics Committees, 2011. . Available online: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/213753 /dh_133993.pdf (accessed on 7 November 2011).
[10]
Murch, S.; Jenkins, H.; Auth, M.; Bremner, R.; Butt, A.; France, S.; Furman, M.; Gillett, P.; Kiparissi, F.; Lawson, M.; et al. Joint BSPGHAN and Coeliac UK guidelines for the diagnosis and management of coeliac disease in children. Arch. Dis. Child. 2013, 98, 806–811, doi:10.1136/archdischild-2013-303996.
[11]
Stevens, L.; Rashid, M. Gluten-free and regular foods: A cost comparison. Can. J. Diet. Pract. Res. 2008, 69, 147–150, doi:10.3148/69.3.2008.147.
