It is well-known that feeling to be a healthy or sick person most probably results from the mind than from the body. We all know healthy people who feel sick and vice versa. We were interested in the health and sickness feeling of celiac people, their autorating of these feelings and its conditioning factors as well as their expectations. In this paper we present the results of an inquiry to evaluate these situations. We performed a descriptive, transversal and prospective study for 2 years to groups of celiacs and their families. They received a closed inquiry to be completed before the beginning of the talk. The inquiry included personal data and the co-existence of associated or concomitant (AoC) diseases. Most of the sample’s patients felt to be a healthy person (86.8%). Mothers see their children as healthy and the auto rated criteria is significantly better than the adult celiac person (“t”= -6.024 (p = 0.000)). AoC diseases influenced negatively in the feeling of being healthy and strongly decreased the autorating. Longer time passed on treatment reflects an increase feeling of health and of the autorating. In people with AoC diseases and who feel sick, the increased time of treatment did not show significant differences. People with “gluten sensitivity” felt sicker and auto rated themselves with a lower number than celiacs. Many pediatric gastroenterologists notice that the newly agreed definition of celiac disease, referring it as “autoimmune, chronic, incurable, and multisystemic”, results in a very negative character of the condition which might compromise the future labour of this people as well as their admittance to different health insurance systems.
Cueto Rua, E., Guzmán, L., Zubiri, C., Nanfito, G., Urrutia, M. and Mancineli, L. (2014) Aceptability Analysis, Cultural aspects and Personal impact of Diagnosis. In: Rodrigo, L. and Salvador Pena, A., Eds., Celiac Disease and Non-Celiac Gluten Sensitivity, Omni Science, Chapter 20, 407-434. www.omniascience.com
Pham-Short, A., Donaghue, K.C., Ambler, G., Garnett, S. and Craig, M.E. (2016) Quality of Life in Type 1 Diabetes and Celiac Disease: Role of the Gluten-Free Diet. Journal of Pediatrics, 179, 131-138. https://doi.org/10.1016/j.jpeds.2016.08.105
Kalyva, E1, Malakonaki, E., Eiser, C. and Mamoulakis, D. (2011) Health-Related Quality of Life (HRQoL) of Children with Type 1 Diabetes Mellitus (T1DM): Self and Parental Perceptions. Pediatric Diabetes, 12, 34-40.
Kelderman-Bolk, N., Visser, T.J., Tijssen, J.P. and Berghout, A. (2015) Quality of Life in Patients with Primary Hypothyroidism Related to BMI. European Journal of Endocrinology, 173, 507-515. https://doi.org/10.1530/EJE-15-0395
Cueto Rúa, E. and Pecotche, G. (1980) Club de madres de ninos celiacos. Su creación. The 2070 Scientific Session, Sociedad Argentina de Pediatría, Filial La Plata, 10 December 1980. http://www.celiaco.org/index.php/historia
Casellas, F., López Vivancos, J. and Malagelada, J.R. (2005) Perceived Health Status in Celiac Disease. Revista Espanola De Enfermedades Digestivas, 97, 794-804.
Drut, R. and Cueto Rua, E. (1985) Quantitative and Immunohistochemical Analysis of Jejunal Mucosa in Children with Celiac Disease and with Gluten-Free Diet. Archivos Argentinos de Pediatria, 83, 20-24.
Conclusions of the Session of Diagnosis in Small Bowel Diseases (1986) Hospital Sor María Ludovica Noviembre 2 de 1985. Comité de Gastroenterología de la Sociedad Argentina de Pediatría: Acuerdos y normativas en Clínica, Histopatología y Laboratorio. La Plata. Argentina. Archivos Argentinos de Pediatria, 34, 38-39.
Garrote J.A., Gómez-González, E., Bernardo, D., Arranz, E. and Coeliac, C.F. (2008) Disease Pathogenesis: The Proinflammatory Cytokine Network. JPGN, 47, S27-S32.
Abadie, V., Sollid, L.M., Barreiro, L.B. and Jabri, B. (2011) Integration of Genetic and Immunological Insights into a Model of Celiac Disease Pathogenesis. Annual Review of Immunology, 29, 493-525.
Husby, S., Koletzko, S., Korponay-Szabo, I.R., Mearin, M.L., Phillips, A., Shamir, R., Troncone, R., Giersiepen, K., Branski, D., Catassi, C., Lelgeman, M., Maki, M., Ribes-Koninckx, C., Ventura, A. and Zimmer, K.P. (2012) The ESPGHAN Working Group on Coeliac Disease Diagnosis, on Behalf of the ESPGHAN Gastroenterology Committee. European Society for Pediatric Gastroenterology, Hepatology, and Nutrition Guidelines for the Diagnosis of Coeliac Disease. JPGN, 54, 136-160.
Ludvigsson, J.F., Leffler, D.A., Bai, J.C., Biagi, F., Fasano, A., Green, P.H, Hadjivassiliou, M., Kaukinen, K., Kelly, C.P., Leonard, J.N., Lundin, K.E., Murray, J.A., Sanders, D.S., Walker, M.M., Zingone, F. and Ciacci, C. (2013) The Oslo Definitions for Coeliac Disease and Related Terms. Gut, 62, 43-52.
Bai, J.C., Ciacci, C., Corazza, G.R., Fried, M., Olano, C., Rostami-Nejad, M., González, A., Green, P., Gutierrez-Achury, J., Schultz, M., Verdú, E., Barada, K., Gibson, P., Koletzko, S., Coton, T., Mulder, C., Makharia, G. and LeMair, A. (2016) World Gastroenterology Organisation Global Guidelines Celiac Disease.