The prime aim of this study was to find a
psychological process model of patients with terminally ill in home hospice
investigating the contents of a narrative, and the secondary aim was to create
a narrative approach program for nurses. Ten patients narrated their thinking
or feelings along with some prepared questions in two sessions. Patients’
narrative data were categorized by a qualitative analysis and 34 categories were chosen.
They perceived good points in home hospice like “Being able to spend time
freely”, “Close relationships with care staffs and
strong confidence”, though they perceived trouble points like “Suffering from
putting burden on the people around me” or “Worries about economic problems”.
They perceived psychological changes through illness like “Having peace of mind
and becoming kind” “Desire for a natural death”. Moreover they perceived their
life like “Acceptance of one’s life including illness” “My life lived with satisfaction”. They regarded
as important things such as “Spending life time usefully” “Feelings of my
family members and of those around me”, and as hopes “Hope to leave my living
proof” “Living left time to the fullest”. From these categories, we propose an
acceptance model of patients’ life and a narrative program for nurses.
Murata, H. and Morita, T. (2006) Conceptualization of Psycho-Existential Suffering by the Japanese Task Force: The First Step of a Nationwide Project. Palliative and Supportive Care, 4, 279-285. https://doi.org/10.1017/S1478951506060354
Moory, S., Cort, E., Kapari, M., et al. (2009) A Cluster Randomized Controlled Trial of Cognitive Behavioral Therapy for Common Mental Disorders in Patients with Advanced Cancer. Psyhologucal Medicine, 39, 713-723.
Breitbart, W., Rosenfeld, B., Pessin, H., et al. (2015) Meaning-Centered Group Psychotherapy: AN Effective Intervention for Reducing Despair in Patients with Advanced Cancer. Journal of Clinical Oncology, 33, 749-754.
Ando, M., Morita, T., Akechi, T., Okamoto, T., et al. (2010) Japanese Task Force for Spiritual Care. Efficacy of Short-Term Life-Review Interviews on the Spiritual Well-Being of Terminally Ill Cancer Patients. Journal of Pain and Symptom Management, 39, 993-1002.
Stanley, P. and Hurst, M. (2011) Narrative Palliative Care: A Method for Building Empathy. Journal of Social Work in End of Life and Palliative Care, 7, 39-55.
Tait, G.R., Schryer, C., McDougall, A., et al. (2011) Lingard L. Exploring the Therapeutic Power of Narrative at the End of Life: A Qualitative Analysis of Narratives Emerging in Dignity Therapy. BMJ Supportive Palliative Care, 1, 296-300.
Oken, M.M., Creech, R.H, Tormey, D.C., et al. (1982) Toxicity and Response Criteria of the Eastern Cooperative Oncology Group. American Journal of Clinical Oncology, 5, 649-656. https://doi.org/10.1097/00000421-198212000-00014
Lloyd-Williams, M., Shiels, C., Ellis, J., et al. (2018) Pilot Randomized Controlled Trial or Focused Narrative Intervention for Moderate to Severe Depression in Palliative Care Patients: DISCERN Trial. Palliative Medicine, 32, 206-215.
Wise, M., Marchnad, L.R., Roberts, L.J., et al. (2018) Suffering in Advanced Cancer: A Randomized Control Trial of a Narrative Intervention. Journal of Palliative Medicine, 21, 200-207. https://doi.org/10.1089/jpm.2017.0007
Ando, M., Ninosaka, Y., Okamura, K., et al. (2015) Difficulties in Caring for Cancer Patients at the Endo of Life at Home and Complicated Grief. American Jounal of Hospice and Palliative Medicine, 32, 173-177.
Ishi, Y., Miyashita, M., Sato, K., et al. (2012) Family’s Difficulty Scale in End-of Life Home Care: A New Measure for the Family’s Difficulties in Caring for Patients with Cancer at the End of Life at Home from Bereaved Family’s Perspective. Journal of Palliative Medicine, 15, 210-215. https://doi.org/10.1089/jpm.2011.0248
Ohrnbergci, J., Fichera, E. and Sutton, M. (2017) The Relationship between Physical and Mental Health: A Mediation Analysis. Social Science and Medicine, 195, 42-49.
Ando, M., Morita, T., Ahn, S., et al. (2009) International Comparison Study on the Primary Concerns of Terminally Ill Cancer Patients in Short-Term Life Review Interviews among Japanese, Koreans, and Americans. Palliative and Supportive Care, 7, 349-355. https://doi.org/10.1017/S1478951509990289
Ando, M., Morita, T., Akechi, T., et al. (2012) Factors in Narratives to Questions in the Short-Term Life Review Interviews of Terminally Ill Cancer Patients and Utility of the Questions. Palliative and Supportive Care, 10, 83-90.