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Psychology  2018 

Qualitative Study of Wives of Husbands with Autism Spectrum Disorder: Subjective Experience of Wives from Marriage to Marital Crisis

DOI: 10.4236/psych.2018.91002, PP. 14-33

Keywords: Autism Spectrum Disorder, Marital Crisis, Spouses, Subjective Experiences, Qualitative Study

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Despite increasing recognition of the involvement of adults with autism spectrum disorder (ASD) in intimate relationships, little is known about the dynamics of marriages where one partner has ASD. This study aimed to clarify the subjective experiences of wives of husbands with ASD from marriage to marital crisis. Semi-structured interviews were conducted with 15 women married to men with ASD in Japan, in 2016-17. The analysis conducted in this study was based on a modified version of the grounded theory approach. Our investigation revealed how the wives of ASD husbands respond to a crisis after their marriage. The findings describe a process beginning with wives perceiving their husbands as attractive before marriage and then progressing to feeling discomfort with their husbands and struggling with loneliness after marriage. Experiences with social exclusion/inclusion affected this progression. The wives’ repeated discomfort with their husbands and struggles with loneliness eventually led to a major crisis. Finally, the work discusses how these findings may contribute to improving the lives of women with partners with ASD and advances the family stress model.


[1]  Alexander-Passe, N. (2015). The Experience of Being Married to a Dyslexic Adult. Journal of Psychology & Psychotherapy, 5, 2161-0487.
[2]  American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders (DSM-5®). Washington, DC: American Psychiatric Pub.
[3]  Aston, M. (2003). Aspergers in Love: Couple Relationships and Family Affairs. London and New York: Jessica Kingsley Publishers.
[4]  Bodenmann, G., Ledermann, T., & Bradbury, T. N. (2007). Stress, Sex, and Satisfaction in Marriage. Personal Relationships, 14, 551-569.
[5]  Byers, E. S., Nichols, S., & Voyer, S. D. (2013). Challenging Stereotypes: Sexual Functioning of Single Adults with High Functioning Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 43, 2617-2627.
[6]  Emiko, O. (1989). Kindaikazoku to feminizumu (The Modern Family and Feminism). Tokyo: Keisoushobo.
[7]  Engström, I., Ekström, L., & Emilsson, B. (2003). Psychosocial Functioning in a Group of Swedish Adults with Asperger Syndrome or High-Functioning Autism. Autism, 7, 99-110.
[8]  Felmlee, D. H. (1995). Fatal Attractions: Affection and Disaffection in Intimate Relationships. Journal of Social and Personal Relationships, 12, 295-311.
[9]  Glaser, B. G., & Strauss, A. L. (1967). The Discovery of Grounded Theory: Strategies for Qualitative Research. Chicago, IL: Aldine.
[10]  Hellemans, H., Colson, K., Verbraeken, C., Vermeiren, R., & Deboutte, D. (2007). Sexual Behavior in High-Functioning Male Adolescents and Young Adults with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 37, 260-269.
[11]  Hill, R. (1958). Generic Features of Families under Stress. Social Casework, 39, 139-150
[12]  Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and Developmental Receptive Language Disorder—A Follow-Up Comparison in Early Adult Life. II: Social, Behavioural, and Psychiatric Outcomes. Journal of Child Psychology and Psychiatry, 41, 561-578.
[13]  Kanroji, J. (2012). A Study of the Relationship of the Married Couples with Autism Spectrum Disorders: The Communication of Married Couple and the Marital Satisfaction. Annual Bulletin of Clinical Center for Developmental Disorders, Shirayuri College, 15, 62-71.
[14]  Kinoshita, Y. (2003). M-GTA Modified Grounded Theory Approach-Grounded Theory Approach: Shitutekikenkyu he no sasoi. Tokyo: Kabushiki-gaishaKobunsha.
[15]  Lau, W., & Peterson, C. C. (2011). Adults and Children with Asperger Syndrome: Exploring Adult Attachment Style, Marital Satisfaction and Satisfaction with Parenthood. Research in Autism Spectrum Disorders, 5, 392-399.
[16]  Lavee, Y. (2013). Stress Processes in Families and Couples. In Handbook of Marriage and the Family (pp. 159-176). Berlin: Springer.
[17]  Le, B., Dove, N. L., Agnew, C. R., Korn, M. S., & Mutso, A. A. (2010). Predicting Nonmarital Romantic Relationship Dissolution: A Meta-Analytic Synthesis. Personal Relationships, 17, 377-390.
[18]  Orsmond, G. I., Krauss, M. W., & Seltzer, M. M. (2004). Peer Relationships and Social and Recreational Activities among Adolescents and Adults with Autism. Journal of Autism and Developmental Disorders, 34, 245-256.
[19]  Perlman, D., & Peplau, L. A. (1981). Toward a Social Psychology of Loneliness. Personal Relationships, 3, 31-56.
[20]  Renty, J., & Roeyers, H. (2007). Individual and Marital Adaptation in Men with Autism Spectrum Disorder and Their Spouses: The Role of Social Support and Coping Strategies. Journal of Autism and Developmental Disorders, 37, 1247-1255.
[21]  Rusbult, C. E., & Buunk, B. P. (1993). Commitment Processes in Close Relationships: An Interdependence Analysis. Journal of Social and Personal Relationships, 10, 175-204.
[22]  Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of Development in Adolescents and Adults with Autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234-247.
[23]  Strunz, S., Schermuck, C., Ballerstein, S., Ahlers, C. J., Dziobek, I., & Roepke, S. (2017). Romantic Relationships and Relationship Satisfaction among Adults with Asperger Syndrome and High-Functioning Autism. Journal of Clinical Psychology, 73, 113-125.
[24]  Tani, M., Kanai, C., Ota, H., Yamada, T., Watanabe, H., Yokoi, H., & Kato, N. (2012). Mental and Behavioral Symptoms of Person’s with Asperger’s Syndrome: Relationships with Social Isolation and Handicaps. Research in Autism Spectrum Disorders, 6, 907-912.
[25]  Yukawa, Y., Ota, H., Kanai, C., Tani, M., Yamada, T., Hashimoto, R., & Iwanami, A. (2013). Clinical and Psychosocial Characteristics in Adults with Pervasive Development Disorders: A Survey in Japan. International Journal on Disability and Human Development, 12, 25-29.


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