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Cancer, Health Literacy, and Happiness: Perspectives from Patients under Chemotherapy

DOI: 10.1155/2013/291767

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Abstract:

Cancer is a dreaded disease that affects all dimensions of human life. In this context, issues related to the quality of life—as happiness, perception about health status, or health literacy—are important. This study aims to analyze the following topics the perception: the Portuguese cancer patients have about their health status while undergoing chemotherapy, the satisfaction with the information relating to their health, their level of happiness, and their vision of the future. An observational, cross-sectional, and descriptive study was developed. Data were collected between May and July 2012 in the day hospital of a central hospital in northern Portugal. The sample was composed of 92 cancer patients who were asked to answer a questionnaire during chemotherapy. The results indicate that, despite this life-threatening disease, patients consider themselves fairly happy and have an optimistic view of the future. Information about their health condition and religious beliefs was important coping mechanisms to help dealing with the suffering caused by the disease. The study highlights the importance of providing care in a holistic way. Nurses must be alert and available to listen, answer questions, provide supporting structures, or refer to other professionals when needed. 1. Introduction The scientific-technological development that has occurred in the last half of the twentieth century determined important changes in the course of the disease, being the pathologies of chronic character the leading cause of death in modern societies. However, this increase in longevity brought another kind of concerns related to comorbidities and limitations that arise as a result of living with a chronic illness. In general, we live longer but this increase in life expectancy does not always correspond to better quality of life [1]. In this context, issues related to quality of life have been gaining special importance and are widely studied in various contexts, particularly in oncology. Cancer—which is one of the leading causes of death worldwide—is one of the most dreaded diseases in the present [2, 3]. The strong physical, psychological, social, emotional, and spiritual impact reminds the person of one’s vulnerability and leads one to wonder about the meaning of life, and that may cause suffering [4]. Recent studies have shown that the concept of quality of life is closely associated with self-perception about wellbeing, with the satisfaction with life and happiness [5]. In this context, health professionals, particularly in the context of palliative care—whose

References

[1]  D. Armstrong and D. Caldwell, “Origins of the concept of quality of life in cealth care: a rhetorical solution to a political problem,” Social Theory & Health, vol. 2, no. 4, pp. 361–371, 2004.
[2]  D. M. Parkin, F. Bray, J. Ferlay, and P. Pisani, “Global cancer statistics, 2002,” CA Cancer Journal for Clinicians, vol. 55, no. 2, pp. 74–108, 2005.
[3]  F. Kamangar, G. M. Dores, and W. F. Anderson, “Patterns of cancer incidence, mortality, and prevalence across five continents: defining priorities to reduce cancer disparities in different geographic regions of the world,” Journal of Clinical Oncology, vol. 24, no. 14, pp. 2137–2150, 2006.
[4]  A. Visser, B. Garssen, and A. Vingerhoets, “Spirituality and well-being in cancer patients: a review,” Psycho-Oncology, vol. 19, no. 6, pp. 565–572, 2010.
[5]  J. Brown, A. Bowling, and T. Flynn, “Models of quality of life: a taxonomy, overview and systematic review of the literature,” FORUM Project, University of Seffield, Sheffield, UK, 2004.
[6]  National Consensus Project for Quality Palliative Care, Clinical Practice Guidelines For Quality Palliative Care, National Consensus Project for Quality Palliative Care, Pittsburg, Calif, USA, 2nd edition, 2009.
[7]  J. Koffman, M. Morgan, P. Edmonds, P. Speck, R. Siegert, and I. J. Higginson, “Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study,” Psychooncology, vol. 22, no. 5, pp. 1096–1103, 2013.
[8]  J. P. DeGargino, Children’s Health and the Environment: A Global Perspective, World Health Organization, Geneva, Switzerland, 2004.
[9]  M. Espinoza, R. M. Ba?os, A. García-Palacios, et al., “Promotion of emotional wellbeing in oncology inpatients using VR,” Studies in Health Technology and Informatics, vol. 181, pp. 53–57, 2012.
[10]  S. Vicente, J. Péron, I. Biseul et al., “Subjective emotional experience at different stages of Parkinson's disease,” Journal of the Neurological Sciences, vol. 310, no. 1-2, pp. 241–247, 2011.
[11]  B. García-Rodríguez, A. Fusari, B. Rodríguez, J. M. Hernández, and H. Ellgring, “Differential patterns of implicit emotional processing in Alzheimer's disease and healthy aging,” The Journal of Alzheimer'S Disease, vol. 18, no. 3, pp. 541–551, 2009.
[12]  K. Koay, P. Schofield, and M. Jefford, “Importance of health literacy in oncology,” Asia-Pacific Journal of Clinical Oncology, vol. 8, no. 1, pp. 14–23, 2011.
[13]  K. Koay, P. Schofield, K. Gough, et al., “Suboptimal health literacy in patients with lung cancer or head and neck cancer,” Support Care Cancer, vol. 21, no. 8, pp. 2237–2245, 2013.
[14]  T. Gansler, S. J. Henley, K. Stein, E. J. Nehl, C. Smigal, and E. Slaughter, “Sociodemographic determinants of cancer treatment health literacy,” Cancer, vol. 104, no. 3, pp. 653–660, 2005.
[15]  N. T. Brewer, J. P. Tzeng, S. E. Lillie, A. S. Edwards, J. M. Peppercorn, and B. K. Rimer, “Health literacy and cancer risk perception: implications for genomic risk communication,” Medical Decision Making, vol. 29, no. 2, pp. 157–166, 2009.
[16]  M. Jefford and M. H. Tattersall, “Informing and involving cancer patients in their own care,” The Lancet Oncology, vol. 3, no. 10, pp. 629–637, 2002.
[17]  J. A. Adams, D. E. Bailey Jr, R. A. Anderson, and S. L. Docherty, “Nursing roles and strategies in end-of-life decision making in acute care: a systematic review of the literature,” Nursing Research and Practice, vol. 2011, Article ID 527834, 15 pages, 2011.
[18]  I. Vrettos, K. Kamposioras, N. Kontodimopoulos, et al., “Comparing health-related quality of life of cancer patients under chemotherapy and of their caregivers,” The Scientific World Journal, vol. 2012, Article ID 135283, 9 pages, 2012.
[19]  E. J. Taylor, “Prevalence and associated factors of spiritual needs among patients with cancer and family caregivers,” Oncology Nursing Forum, vol. 33, no. 4, pp. 729–735, 2006.
[20]  S. Pinto, S. Caldeira, and J. C. Martins, “A esperan?a da pessoa com cancro—Estudo em contexto de quimioterapia,” Revista De Enfermagem Referência, vol. 3, no. 7, pp. 23–31, 2012.
[21]  S. Pinto, S. Caldeira, and J. C. Martins, “A espiritualidade nos pacientes com cancer em quimioterapia,” CuidArte, Enferm, vol. 6, no. 1, pp. 8–14, 2012.
[22]  A. E. Rippentrop, E. M. Altmaier, and C. P. Burns, “The relationship of religiosity and spirituality to quality of life among cancer patients,” Journal of Clinical Psychology in Medical Settings, vol. 13, no. 1, pp. 29–35, 2006.
[23]  M. L. Chen, “Pain and hope in patients with cancer: a role for cognition,” Cancer Nursing, vol. 26, no. 1, pp. 61–67, 2003.
[24]  R. Twycross, Cuidados Paliativos, Climepsi Editores, Lisbon, Portugal, 2nd edition, 2003.
[25]  M. V. Cabral, “Práticas religiosas e atitudes sociais dos Portugueses numa perspectiva comparada,” in Inquérito Permanente às Atitudes Sociais Dos Portugueses, J. Machado-Pais and R. e Bio-ética, Eds., Imprensa de Ciências Sociais, Lisbon, Portugal, 2nd edition, 2001.

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