%0 Journal Article
%T Community Views on ¡®What I Want ¡®Before I Die¡¯
%A Deb Rawlings
%A Jennifer Tieman
%A Lauren Miller-Lewis
%J Behavioral Sciences | An Open Access Journal from MDPI
%D 2018
%R https://doi.org/10.3390/bs8120111
%X Abstract Few previous studies have formally examined people¡¯s wishes regarding what they want to do before they die. This study aimed to describe responses to an activity within a Massive Open Online Course (MOOC) where people considered what was important when faced with their own mortality. We asked participants to complete the following: ¡°Before I Die, I want to¡­¡±. The content of participants¡¯ responses ( n = 633) was analysed qualitatively with a coding schema developed and then applied. All authors independently coded the first 100 ¡°Before I Die¡± statements, followed by a second round of coding where themes were verified and confirmed. Following this, two independent raters coded all 633 responses, obtaining 95.24% agreement (Cohen¡¯s Kappa = 0.789, p < 0.0005). Twelve themes emerged from the data: family; do an activity; personal aspiration; live life fully, happiness; love; the greater good; peace; legacy; gratitude; religion; and health. Responses could also be distinguished as being inward-facing (about the self), and outward-facing (about others). Reflecting on what is important and on what a person wishes to achieve or address before they die can be seen as a companion process to advance care planning which addresses what an individual wants to plan to manage their actual death. View Full-Tex
%K death and dying
%K MOOC
%K community conversations
%U https://www.mdpi.com/2076-328X/8/12/111