%0 Journal Article
%T Genomic Data
%J The Journal of Law, Medicine & Ethics
%@ 1748-720X
%D 2019
%R 10.1177/1073110519840482
%X Making data broadly accessible is essential to creating a medical information commons (MIC). Transparency about data-sharing practices can cultivate trust among prospective and existing MIC participants. We present an analysis of 34 initiatives sharing DNA-derived data based on public information. We describe data-sharing practices captured, including practices related to consent, privacy and security, data access, oversight, and participant engagement. Our results reveal that data-sharing initiatives have some distance to go in achieving transparency
%U https://journals.sagepub.com/doi/full/10.1177/1073110519840482