%0 Journal Article %T Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing? %A Debra J. Mathews %A Elissa R. Weitzman %A Ingrid A. Holm %A Kurt D. Christensen %A Noelle L. Huntington %A Phoebe B. Mitchell %A Robert C. Green %A Sarah K. Savage %A Sonja I. Ziniel %J Journal of Empirical Research on Human Research Ethics %@ 1556-2654 %D 2018 %R 10.1177/1556264617753483 %X The opportunity to receive individual research results (IRRs) in accordance with personal preferences may incentivize biobank participation and maximize perceived benefit. This trial investigated the relationship between parentsĄ¯ preferences and intent to participate (ITP) in biobank research utilizing their childĄ¯s genetic information. We randomized parents of pediatric patients to four hypothetical biobanks, one of which employed a preference-setting model for return of results regarding their child. ITP was highest among those desiring all types of IRRs (93.3%) and decreased as participants became increasingly selective with their preferences (p < .0001). We demonstrated that most parents would participate in a biobank that allows for preference setting; however, those who set preferences to receive a narrower set of IRRs are less likely to participate %K biorepositories/biobanks %K genetic research %K return of results %K bioethics %K children and adolescent/pediatrics %U https://journals.sagepub.com/doi/full/10.1177/1556264617753483