%0 Journal Article
%T ¡°People don¡¯t understand what goes on in here¡±: A consensual qualitative research analysis of inmate
%A Christopher W Kerr
%A David J Byrwa
%A Debra L Luczkiewicz
%A Jennifer Lodi-Smith
%A Jennifer M Breier
%A Pei C Grant
%A Rachel M Depner
%J Palliative Medicine
%@ 1477-030X
%D 2018
%R 10.1177/0269216318755624
%X The age demographic of the incarcerated is quickly shifting from young to old. Correctional facilities are responsible for navigating inmate access to healthcare; currently, there is no standardization for access to end-of-life care. There is growing research support for prison-based end-of-life care programs that incorporate inmate peer caregivers as a way to meet the needs of the elderly and dying who are incarcerated. This project aims to (a) describe a prison-based end-of-life program utilizing inmate peer caregivers, (b) identify inmate-caregiver motivations for participation, and (c) analyze the role of building trust and meaningful relationships within the correctional end-of-life care setting. A total of 22 semi-structured interviews were conducted with inmate-caregivers. Data were analyzed using Consensual Qualitative Research methodology. All inmate-caregivers currently participating in the end-of-life peer care program at Briarcliff Correctional Facility were given the opportunity to participate. All participants were male, over the age of 18, and also incarcerated at Briarcliff Correctional Facility, a maximum security, state-level correctional facility. In total, five over-arching and distinct domains emerged; this manuscript focuses on the following three: (a) program description, (b) motivation, and (c) connections with others. Findings suggest that inmate-caregivers believe they provide a unique and necessary adaptation to prison-based end-of-life care resulting in multilevel benefits. These additional perceived benefits go beyond a marginalized group gaining access to patient-centered end-of-life care and include potential inmate-caregiver rehabilitation, correctional medical staff feeling supported, and correctional facilities meeting end-of-life care mandates. Additional research is imperative to work toward greater standardization of and access to end-of-life care for the incarcerated
%K Prisons
%K hospice care
%K qualitative research
%K healthcare quality
%K access
%K and evaluation
%U https://journals.sagepub.com/doi/full/10.1177/0269216318755624