%0 Journal Article
%T Development and preliminary validation of the Scleroderma Support Group Leader Self
%A Brett D. Thombs
%A Ghassan El-Baalbaki
%A Linda Kwakkenbos
%A Marie-Eve Carrier
%A Mia P¨¦pin
%A Nicole E. Pal
%A Sandra Pel¨¢ez
%A Stephanie T. Gumuchian
%A Vanessa C. Delisle
%A Vanessa L. Malcarne
%A null
%J Journal of Scleroderma and Related Disorders
%@ 2397-1991
%D 2018
%R 10.5301/jsrd.5000260
%X Support groups are an important resource for people living with systemic sclerosis (SSc; scleroderma). Peer support group leaders play an important role in the success and sustainability of SSc support groups, but face challenges that include a lack of formal training. An SSc support group leader training program could improve leader self-efficacy to carry out important leadership tasks, including the management of group dynamics. However, no measures exist to assess self-efficacy among SSc support group leaders. The objective of this study was to develop and provide preliminary evidence on the reliability and validity of the Scleroderma Support Group Leader Self-efficacy Scale (SSGLSS). The SSGLSS was administered to two sets of SSc support group leaders from North America, Europe, and Australia. Study 1 participants (n = 102) completed the SSGLSS only. Study 2 participants (n = 55) completed the SSGLSS and the Oldenburg Burnout Inventory (OLBI). For both studies, we evaluated internal consistency reliability using Cronbach¡¯s coefficient alpha. Convergent validity was assessed in Study 2 using Pearson correlations of the SSGLSS with the OLBI exhaustion and disengagement subscales. Cronbach¡¯s alpha was 0.96 in Study 1 and 0.95 in Study 2. Consistent with our hypotheses, there was a small negative correlation between SSGLSS scores and the OLBI exhaustion subscale (r = -0.25, p<0.01) and a moderate negative correlation between SSGLSS scores and the disengagement subscale (r = -0.38, p<0.01). These results suggest that the SSGLSS is a reliable and valid measure of self-efficacy for carrying out support group leadership tasks
%K Patient-reported outcome measures
%K Psychometrics
%K Scleroderma
%K Systemic
%K Self-help groups
%K Social support
%U https://journals.sagepub.com/doi/full/10.5301/jsrd.5000260