%0 Journal Article
%T Stroke survivor follow
%A Brenda Grabsch
%A Dominique A Cadilhac
%A Karen M Barclay-Moss
%A Monique Kilkenny
%A Natasha A Lannin
%J International Journal of Stroke
%@ 1747-4949
%D 2019
%R 10.1177/1747493018806190
%X The Australian Stroke Clinical Registry (AuSCR) collects patient-reported outcomes at 90¨C180 days post-stroke. During telephone interviews, stroke survivors or their carers/family members often explain why they did not respond to a previously mailed survey. This feedback is useful to explore respondentsĄŻ experiences of the follow-up process. Three main reasons for not returning surveys included: health-related time constraints, confusion about survey questions, and stroke denial. Such information is helpful in improving procedures for clinical quality disease registries and researchers using postal questionnaires
%K Follow-up
%K survey methods
%K stroke
%K clinical registry
%K quality improvement
%U https://journals.sagepub.com/doi/full/10.1177/1747493018806190