%0 Journal Article
%T Good end
%A Ines Basso
%A Maria Grazia De Marinis
%A Paola Di Giulio
%A Sara Campagna
%A Silvia Gonella
%J Palliative Medicine
%@ 1477-030X
%D 2019
%R 10.1177/0269216319840275
%X Nursing homes are becoming a common site where delivering end-of-life care for older adults. They often represent the junction between the curative and the palliative phase. To identify the elements that nursing home residents¡¯ family carers perceive as good end-of-life care and develop a conceptual model of good end-of-life care according to the family perspective. Systematic review (PROSPERO no. 95581) with meta-aggregation method. Five electronic databases were searched from inception between April and May 2018. Published qualitative studies (and mixed-method designs) of end-of-life care experience of nursing home family carers whose relative was dead or at the end-of-life were included. No language or temporal limits were applied. In all, 18 studies met inclusion criteria. A ¡®life crisis¡¯ often resulted in a changed need of care, and the transition towards palliative care was sustained by a ¡®patient-centered environment¡¯. Family carers described good end-of-life care as providing resident basic care and spiritual support; recognizing and treating symptoms; assuring continuity in care; respecting resident¡¯s end-of-life wishes; offering environmental, emotional and psychosocial support; keeping family informed; promoting family understanding; and establishing a partnership with family carers by involving and guiding them in a shared decision-making. These elements improved the quality of end-of-life of both residents and their family, thus suggesting a common ground between good end-of-life care and palliative care. The findings provide a family-driven framework to guide a sensitive and compassionate transition towards palliative care in nursing home
%K Family
%K life change events
%K nursing homes
%K palliative care
%K qualitative research
%K systematic review
%K terminal care
%U https://journals.sagepub.com/doi/full/10.1177/0269216319840275