%0 Journal Article
%T Cocreation or Collusion: The Dark Side of Consumer Narrative in Qualitative Health Research
%A Jan Pascal
%A Olivia Sagan
%J Illness, Crisis & Loss
%@ 1552-6968
%D 2018
%R 10.1177/1054137316662576
%X Health, mental health, and social care policy are dominated by the imperative of employing person-centered approaches. Such involvement of the ¡°consumer¡± is generally claimed to provide a counter-narrative to the psychiatric and medical paradigm of illness. Taking a critical and reflexive standpoint, we find ourselves asking: Is there a dark side to employing person-centered approaches and potential loss and risk to participants themselves? To explore these questions further, we undertook a condensed critique of the current mental health, health, and social care policy arena. We then move to methodological concerns about ways in which person-centered research, including our own, can inadvertently reproduce the neoliberalist agenda. To conclude, we offer our own lived experiences as a cautionary tale. We also posit that a post-Foucauldian governmentality framework can assist researchers to avoid contributing to the very problems we wish to resolve
%K loss
%K bereavement
%K cancer
%K illness
%K qualitative data
%K research methods
%K phenomenology
%K theory
%K narrative
%K mental health
%U https://journals.sagepub.com/doi/full/10.1177/1054137316662576