%0 Journal Article
%T Outcome Measures in UCLP: The Modified 5
%A Andy R. Ness
%A Anthony J. Ireland
%A Jonathan R. Sandy
%A Joyce I. Russell
%A Nikki E. Atack
%A Sam D. Leary
%A Scott A. Deacon
%A Tarun K. Mittal
%J The Cleft Palate
%@ 1545-1569
%D 2019
%R 10.1177/1055665618774018
%X Can we reliably discriminate severity within the existing categories of the 5-Year-OldsĄŻ Index? Retrospective method comparison and development study. School of Oral and Dental Science, University of Bristol. Dental study models of 5-year-olds with unilateral cleft lip and palate (UCLP) were collected from the archives of 2 national cleft surveys (n = 351). One hundred randomly selected models were ranked to construct the modified 5-Year-OldsĄŻ Index and also scored using a visual analogue scale (VAS). Reliability testing was performed on 51 study models. Visual analogue scale scores were used to aid statistical analysis and investigate the reliability of a VAS for outcome measurement. The modified 5-Year-OldsĄŻ Index was then applied to 198 study models of 5-year-olds with UCLP. The modified 5-Year-OldsĄŻ Index showed excellent intra and interexaminer agreement (intraclass correlation > 0.94) and good discrimination of severity. When applied to the Cleft Care UK participants (n = 198), the modified 5-Year-OldsĄŻ Index showed good discrimination of severity within the better categories (groups 1-3) of the 5-Year-OldsĄŻ Index. Visual analogue Scale scores resulted in unacceptable variation between measurements. The new modified 5-Year-OldsĄŻ Index is a reliable method of assessing outcomes at 5 years of age and showed improved discriminatory power between the Ą°betterĄ± outcome categories than the original 5-Year-OldsĄŻ Index. A VAS was found to be unsuitable for assessing outcome at 5 years of age for children with UCLP
%K 5-Year-OldsĄŻ Index
%K unilateral cleft lip and palate
%K study models
%K outcome measures
%U https://journals.sagepub.com/doi/full/10.1177/1055665618774018