%0 Journal Article
%T A cross-sectional evaluation of the idiopathic pulmonary fibrosis patient satisfaction and quality of life with a care coordinator
%A Afia Aziz-Ur-Rehman
%A Czerysh Cabalteja
%A Daniel Grima
%A Daniel Moldaver
%A Diana Fung
%A Gerard Cox
%A Margaret Ainslie-Garcia
%A Martin Kolb
%A Nathan Hambly
%A Nima Makhdami
%A Patricia DeMarco
%A Sarah Goodwin
%J SCIE-indexed Journal
%D 2019
%R 10.21037/jtd.2019.11.41
%X Access to specialized multidisciplinary teams is recommended by international guidelines as best-treatment for idiopathic pulmonary fibrosis (IPF), an incurable progressive fibrotic lung disease with poor prognosis (1-3). Optimal IPF patient management may include access to a dedicated team of allied health care providers, including a care coordinator, that understands the benefits and potential adverse effects of anti-fibrotic therapy and multifaceted symptomatic management of patients. Specialized care teams have proven effective in the management of complex disease states including stroke, musculoskeletal disorders, and cancer metastasis (4-6). These teams have been associated with improvements in prognosis, patient independence and satisfaction. Patient satisfaction has been identified as a key outcome in effective IPF patient-centered care (2)
%U http://jtd.amegroups.com/article/view/33941/html