%0 Journal Article
%T Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilot study
%A Brian M. Feldman
%A C. Egla Rabinovich
%A Elena Pope
%A Fatma Dedeoglu
%A For the CARRA Registry Investigators
%A Gloria C. Higgins
%A Kathryn S. Torok
%A Katie Stewart
%A Mara L. Becker
%A Maria F. Ibarra
%A Marilynn Punaro
%A Polly J. Ferguson
%A Robert C. Fuhlbrigge
%A Ronald M. Laxer
%A Sandy Hong
%A Suzanne C. Li
%A Thomas Mason
%A II
%A Tracy Andrews
%J Archive of "Pediatric Rheumatology Online Journal".
%D 2019
%R 10.1186/s12969-019-0350-5
%X Working jLS Study Entry Criteria: Inclusion, Exclusion, and Active Disease criteri
%K Juvenile localized scleroderma
%K Comparative effectiveness trial
%K Study design
%K Consensus treatment plan
%K Methotrexate
%K Corticosteroids
%K Assessment tools
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6632199/