%0 Journal Article
%T A pilot test of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) and the Jenerette Self-Care Assessment (J-SAT) Tools in adults with sickle cell disease
%A Christian Douglas
%A Dominique Bulgin
%A Paula Tanabe
%J Archive of "Pilot and Feasibility Studies".
%D 2019
%R 10.1186/s40814-019-0471-0
%X CONSORT diagra
%K Health-related quality of life
%K Patient-reported outcomes
%K PROMIS
%K ASCQ-Me
%K Sickle cell disease
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6610829/