%0 Journal Article
%T The availability and affordability of orphan drugs for rare diseases in China
%A Juanjuan Hu
%A Liang Zhang
%A Rui Huang
%A Shiwei Gong
%A Si Jin
%A Xiaoyun Pan
%A Xin Chen
%A Yi Xu
%A Yingxiao Wang
%J Archive of "Orphanet Journal of Rare Diseases".
%D 2016
%R 10.1186/s13023-016-0392-4
%X Orphan drugs are intended to treat, prevent or diagnose rare diseases. In recent years, China healthcare policy makers and patients have become increasingly concerned about orphan drug issues. However, very few studies have assessed the availability and affordability of orphan drugs for rare diseases in China. The aim of this study was to provide an overview of the availability and affordability of orphan drugs in China and to make suggestions to improve patient access to orphan drugs
%K Rare disease
%K Orphan drug
%K Availability
%K Price
%K Affordability
%K China
%U https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4769558/