%0 Journal Article
%T Experiences of Siblings of Individuals with Autism Spectrum Disorders
%A Maureen E. Angell
%A Hedda Meadan
%A Julia B. Stoner
%J Autism Research and Treatment
%D 2012
%I Hindawi Publishing Corporation
%R 10.1155/2012/949586
%X The purpose of this study was to explore the experiences of siblings of individuals with autism spectrum disorders (ASDs) and identify their self-reported support needs. We conducted in-person semi-structured interviews with 12 siblings aged 7 to 15 of children aged 6 to 15 with ASDs. Employing a qualitative collective case study research method, we conducted cross-case analyses to address our research questions. Three major themes emerged: (a) descriptions of the sibling subsystem (b) cohesion between and among the siblings, and (c) adaptability of the participant siblings to having family members with ASDs. Discussion of these findings and recommendations for future research contributes to the existing literature on siblings of children with disabilities. 1. Introduction Autism spectrum disorders (ASDs) are a group of developmental disabilities characterized by atypical development in socialization, communication, and behavior [1]. The Centers for Disease Control and Prevention (CDC) reported that more children are being diagnosed with ASDs than ever before. The most recent data reported by the CDC show that about one in every 88 children has ASD [2]. Many individuals with ASDs have unique characteristics that could impact family members, including parents, siblings, and extended family members [3], and, therefore, researchers have been exploring the experiences of family members when children with ASDs are involved (e.g., [4]). Family systems theory has several basic assumptions: (a) family characteristics are inputs into the family system, to which the family responds, and from which outputs (i.e., family functions such as affection, daily care, etc.) are produced; (b) the family is a whole system and is affected by the relationships among family members, and (c) boundaries exist between family subsystems (i.e., parental, marital, sibling, and extended family) and with the outside world [5]. Family member interaction occurs within and across family subsystems, has varying levels of cohesion (emotional bonding) and adaptability (ability to change in demand to stressful situations), is a dynamic process, and provides children with their first interactions with others. Balanced levels of cohesion and adaptability are the most conducive to ˇ°healthy family functioningˇ± [6, page 65]. For families with children with ASDs, the sibling subsystem is of heightened importance since the sibling relationship can be the first and most intense peer relationship [7]. Typical sibling relationships change over time and provide the siblings opportunities to experience
%U http://www.hindawi.com/journals/aurt/2012/949586/