%0 Journal Article
%T Stress and self-concept in parents of children with fragile X-syndrome / Estresse e autoconceito em pais e m es de crian as com a s¨ªndrome do X-fr¨¢gil
%A Zuleika Ana Cherubini
%A Cleonice Alves Bosa
%A Denise Ruschel Bandeira
%J Psicologia: Reflex£¿o e Cr¨ªtica
%D 2008
%I Universidade Federal do Rio Grande do Sul
%X The Fragile X Syndrome is the major inherited intellectual disability, superseded only by Down Syndrome, and it is transmitted mostly by females. Patients with Fragile X Syndrome show a set of physical, clinical, behavioral and cognitive features that may impact the family structures, especially the parental figures. This study investigates the stress and self-concept of 15 parents of boys with Fragile X Syndrome, 15 parents of boys with Down syndrome and 15 with typical development accordingly to the biopsychosocial model of Bradford. The results showed a significant difference of self-concept between mothers of children with Fragile X Syndrome and typical developmental groups, but not in those with Down Syndrome, suggesting that the transmission factor solely does not explain differences in self-concept.
%K Fragile X Syndrome
%K Down Syndrome
%K parental stress
%K self-concept
%K social support
%U http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0102-79722008000300009&lng=pt&nrm=iso&tlng=pt