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Search Results: 1 - 10 of 3518 matches for " Cristiano Guedes "
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Sociabilidade e sociedade de risco: um estudo sobre rela es na modernidade
Cristiano Guedes
Physis: Revista de Saúde Coletiva , 2005, DOI: 10.1590/s0103-73312005000200009
O que é ética em Pesquisa; Dirce Guilhem & Debora Diniz - DOI: 10.3395/reciis.v2.Sup1.215en
Cristiano Guedes
RECIIS : Electronic Journal of Communication, Information & Innovation in Health , 2008,
O que é bioética?
Guedes Cristiano
Revista Estudos Feministas , 2003,
Anemia Falciforme: Um Problema Nosso. Uma abordagem bioética sobre a nova genética
Diniz, Debora;Guedes, Cristiano;
Cadernos de Saúde Pública , 2003, DOI: 10.1590/S0102-311X2003000600020
Abstract: this article analyzes one of the educational initiatives of the brazilian ministry of health on hemoglobinopathies: the leaflet entitled sickle cell anaemia: a brazilian problem. the purpose is to discuss the moral values associated with initiatives in genetics education, and the case study focuses on public policies related to sickle cell anaemia in brazil. the analysis shows that the topics in the leaflets fluctuate between disease prevention policies and human rights protection, a basic characteristic of the new genetics. in addition, the leaflet?s excessive biomedical information hinders understanding by lay readers. the results are analyzed in the light of the contemporary bioethical debate on the new genetics.
Confidencialidade, aconselhamento genético e saúde pública: um estudo de caso sobre o tra?o falciforme
Diniz, Debora;Guedes, Cristiano;
Cadernos de Saúde Pública , 2005, DOI: 10.1590/S0102-311X2005000300008
Abstract: sickle cell anemia is the most prevalent genetic disease in brazil. screening for sickle cell trait in blood donation centers has been recommended by the brazilian government since 1976. this screening mechanism is one of most common forms of genetic screening for sickle cell disease in the country. this article is based on an ethnographic survey of individuals undergoing genetic counseling in a large blood donation center. the article contends that confidentiality should be a prerequisite for the broad dissemination of genetic information in public health. the ethical principle of confidentiality needs to be seen as a human right and public health issue.
Informa??o genética na mídia impressa: a anemia falciforme em quest?o
Diniz,Debora; Guedes,Cristiano;
Ciência & Saúde Coletiva , 2006, DOI: 10.1590/S1413-81232006000400026
Abstract: this article examines the strategies used by the media to approach and disseminate information about the most prevalent genetic disease in brazil, sickle cell anemia. in this investigation we analyzed all articles on this matter published between 1998 and 2002 in two newspapers: a tarde (state of bahia, 41 articles) and folha de s. paulo (state of s?o paulo, 25 articles). we selected four variables: prevention, risk awareness, genetic counseling and the racial dimension of the disease. the results revealed that the national media were giving strong emphasis to prevention. the topic genetic prevention poses a number of ethical dilemmas, particularly in brazil where selective abortion is illegal. consequently, the discourse of the media concentrates on pre-conception counseling. the media also appeal to risk groups and carriers to seek for identification of their condition and specialized care. strong emphasis is further given to the idea that informed people can help to prevent the disease. the subtle line between genetic prevention and recognizing the individual right to reproductive autonomy represents an ethical challenge not only for every public health initiative but also for the media.
Um caso de discrimina??o genética: o tra?o falciforme no Brasil
Guedes, Cristiano;Diniz, Debora;
Physis: Revista de Saúde Coletiva , 2007, DOI: 10.1590/S0103-73312007000300006
Abstract: this paper analyses a case of genetic discrimination of a brazilian volleyball athlete. a routine exam identified the sickle cell trait in her blood. the sickle cell trait is one of the most prevalent genetic information in brazilian population, but it not considered a genetic disease. the advancement of clinical genetic promotes a popularization of genetic tests in different health care initiatives. the aims of this paper are: 1) to criticize the argument supporting the test for sickle cell trait as a health care initiative; 2) to demonstrate how the popularization of genetic information demands genetic counseling and ethical protections. the analysis demonstrates how the athlete exclusion from the official volleyball team is not supported by medicine and is a case of genetic discrimination.
A ética na história do aconselhamento genético: um desafio à educa??o médica
Guedes, Cristiano;Diniz, Debora;
Revista Brasileira de Educa??o Médica , 2009, DOI: 10.1590/S0100-55022009000200012
Abstract: genetic counseling is a biomedical practice that appeared in the united states in the 1940s and spread elsewhere in the world with the popularization of genetic information and the new genetics in public health. a genetic counseling session aims to inform and orient individuals on their genetic tests, presenting notions of probabilities, risks, and genetic diseases. thus, this biomedical practice combines health care, social assistance, and education. this paper describes the emergence and development of genetic counseling and discusses some of its ethical challenges.
O campo da anemia falciforme e a informa o genética: um estudo sobre o aconselhamento genético
Cristiano Guedes de Souza
Sociedade e Estado , 2006, DOI: 10.1590/s0102-69922006000100018
Confidencialidade, aconselhamento genético e saúde pública: um estudo de caso sobre o tra o falciforme
Diniz Debora,Guedes Cristiano
Cadernos de Saúde Pública , 2005,
Abstract: A anemia falciforme é a doen a genética com maior prevalência no Brasil. Desde 1976, recomenda-se que o exame para identifica o do tra o falciforme fa a parte do protocolo de triagem de doadores de sangue, sendo esse um dos mecanismos mais eficazes de identifica o genética em saúde pública para as altera es falciformes no país. Por meio de um estudo etnográfico sobre o aconselhamento genético ministrado às pessoas identificadas como portadoras do tra o falciforme em um dos principais centros de doa o de sangue, este artigo defende que a confidencialidade no trato da informa o genética deve ser entendida como uma quest o de saúde pública assim como de direitos humanos.
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