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HIV clinic caregivers’ spiritual and religious attitudes and behaviors  [PDF]
Elizabeth A. Catlin, Jeanne H. Guillemin, Julie M. Freedman, Mary Martha Thiel
Health (Health) , 2010, DOI: 10.4236/health.2010.27120
Abstract: Based on prior research, we hypothesized that staff in an outpatient clinic caring for an HIV patient population might rely on religious and spiritual frameworks to cope with the strains of their work and that their responses to a spiritual and religious survey might reflect work-related spiritual distress. Surveys were completed by 78.7% of staff (n = 59). All respondents scored in the "moderate" range for religious and spiritual well-being as well as existential satisfaction with living. The large majority agreed that the religious and spiritual concerns of patients have a place in patient care. Nurses, (88.2% of nurse respondents) viewed assessing the spiritual needs of patients as their responsibility, (p = 0.03). While 82% of HIV clinic respondents privately prayed for patients always, often or sometimes, this did not include physicians. Physicians in this clinic setting appeared to be less spiritual and religious, based on their survey responses, than coworkers and than US physicians in general. The majority of clinic physicians (78%) believed that God does not suffer with the suffering patients, in contrast to the majority of support staff (69%) and nearly half of the nurses, who believed that God does suffer with them, (p = 0.018). Contrary to our expectation, respondents did not report work-related spiritual distress, which may be related to improved therapies that can prolong and improve patients’ lives. Survey data revealed, however, a surprising level of engagement in and reliance on spiritual and religious frameworks among nurses and support staff. Whether the absence of measured spiritual distress is linked, in a causal rather than random manner, to spiritual and religious reliance by certain of these health care providers, is unknown.
Surgery and Caregiving: Loneliness of the Patients and Those Who Care for Them  [PDF]
Ami Rokach, Yona Miller, Sharon Shick, Rachel Abu, Idit Matot
Open Journal of Medical Psychology (OJMP) , 2014, DOI: 10.4236/ojmp.2014.33024
Abstract: This research, conducted on patients and caregivers, examined the qualitative aspects of their loneliness. Patients were divided into those who were approached before they had surgery, and those post operatively. We collected information about their tumors, which were either benign or malignant. The patients’ loneliness was compared to their caregivers who were either intimate partners or “others”, i.e. family members and friends. The loneliness questionnaire, has already been extensively utilized in previous studies, and was used to explore the various aspects of loneliness of those groups. Significant differences in subscale scores were found in patients pre and post surgery, with those who have already had surgery scoring higher. Additionally, those who were cared for by a partner scored lower on the loneliness subscales than those attended to by “other”. Interestingly, the only significant difference in the caregiver group was between men and women, in line with the socialization process of the genders, which makes women more open and vocal about their feelings and needs.
Biodanza in Healthcare Residences: Qualitative Study  [PDF]
Diletta Calamassi, Angelo Palfrader, Cristina Biagiotti, Roberto Galli
Open Journal of Nursing (OJN) , 2019, DOI: 10.4236/ojn.2019.91005
Abstract: Objective: Biodanza seems able to improve well-being and personal abilities and to prevent stress. This study’s aim was to explore the experiences of the professional caregivers who participated in the Biodanza sessions. Materials and methods: The study which was carried out could be defined as a hermeneutic phenomenological study. In-depth and face-to-face interviews, as well as audio recording of professional caregivers who attended 24 sessions of Biodanza (12 sessions with only the professional caregivers and 12 sessions with patients with Alzheimer’s disease), were used as methods to carry out the study. Subsequently, the interviews were transcripted and the narrative data were analyzed using the Giorgi method. Results: 6 Units of Meaning emerged (major topics) from the study: Feelings before the beginning of the sessions and during the Biodanza; Emotions during the sessions of Biodanza; The influence that the Biodanza experience had in the workplace; The impact of the Biodanza experience on personal life; The professional care givers’ perceptions about the benefits of Biodanza on the patients; Organizational aspects for participation in the sessions of Biodanza. At first, Biodanza may cause embarrassment and initiating a kind of contact with each other may be difficult. Subsequently, positive emotions (such as energy and tranquility) arise in those who take part in Biodanza session. On the workplace, the subjects start having a better relationship with the colleagues who have also participated in the Biodanza sessions. They also feel less stressed during work and in private life as well. They feel like they’re able to love and appreciate life more. Based on the caregivers’ opinion, the patients also benefit from the Biodanza sessions. It’s important to pay attention to the organization of the Biodanza sessions, in order not to cause discomfort to the operators during their daily work. Conclusions: The professional caregivers believe that Biodanza is helpful both on a personal level and in improving the relationship between people within the workgroup. The professional caregivers see improvements in the patients in regard to movement and deambulation, concentration, and aggression.
Assessing the Relationship between Caregivers Burden and Availability of Support for Family Caregivers’ of HIV/AIDS Patients in Calabar, South East Nigeria  [PDF]
Ekaete Francis Asuquo, Josephine B. Etowa, Prisca Adejumo
World Journal of AIDS (WJA) , 2013, DOI: 10.4236/wja.2013.34043

Purpose: This study examined the level of burden and the extent of support on family caregivers of people living with AIDS (PLWHA) in Calabar, South East Nigeria. Methods: A mixed method with cross sectional approach was used. Purposive sampling technique guided the recruitment process and data collection methods included, semi-structured questionnaires and focusing group discussion. 260 respondents participated in the study. The quantitative data were mined with the aid of SPSS and the qualitative data were analysed with the aid of NVivo8 using thematic analysis. Results: Results indicated high level of burden with limited support to caregivers. A Chi-square value of 25.1 was obtained at P < 0.05, suggesting a significant relationship between availability of support and caregivers burden. This relationship was supported by the themes of physical, social, emotional and financial burden for the caregivers. Similarly, information on coping skills, emotional support, financial assistance

Estratégias do membro da família prestador de cuidados face às manifesta??es de confus?o do seu familiar
Sousa,Joana; Silva,Abel; Marques,Paulo;
Revista de Enfermagem Referência , 2011,
Abstract: this study was conducted with the following goals: to identify manifestations of acute confusion (ac) that patients have at home and to identify the strategies used by family caregivers (mfpcs) to deal with these manifestations. accordingly, the work was divided into two parts: a) the first took place in the hospital setting, using a quantitative approach, and b) the second took place at home, based on a qualitative case study methodology. for identification of the sample, at the first stage the neecham confusion scale (ncs) was administered to in-patients in a hospital setting, and one month after discharge follow-up of those who had acute confusion (ac) was carried out. it was found that only 17.3% of patients returned home. of these, after assessment with the ncs, only those who still had confusion were selected for semi-structured interview of their mfpc in order to achieve the study goals. in the interviews, participants revealed three categories related to manifestations of confusion: 1) psychomotor; 2) orientation and 3) inappropriate social behaviour, and two related to strategies: a) non-pharmacological strategies, and 2) pharmacological strategies. inability to act was also revealed in the interviews. further studies are needed with larger samples to better understand the problem.
Representaciones sociales del cuidado del anciano en trabajadores de salud en un ancianato
Rodrigues, Rosalina A.Partezani;Andrade, Oséias Guimar?es de;Marques, Sueli;
Revista Latino-Americana de Enfermagem , 2001, DOI: 10.1590/S0104-11692001000100002
Abstract: this study aimed at identifying the social representations of the care given to the elderly by caregivers in a nursing home. fifteen caregivers aged 28 to 32 years old who worked in a nursing home in the city of ribeir?o preto, s?o paulo, brazil were subjects for this work and the theory of social representations was used as reference. data were collected by means of semi-structured interviews and analyzed by content analysis, which enabled the elaboration of categories, thus facilitating comprehension. among such categories are: informal education, formal education, satisfaction, sadness, modes of confrontation and denegation.
Fear of HIV Susceptibility Influencing Burden of Care among Nurses in South-East Nigeria  [PDF]
Ekaete Francis Asuquo, Prisca Adejumo, Josephine Etowa, Adebayo Adejumo
World Journal of AIDS (WJA) , 2013, DOI: 10.4236/wja.2013.33031

HIV/AIDS currently is a major cause of disability and mortality especially in sub-Saharan Africa. As the population affected by HIV/AIDS increases, so does the burden of this chronic disease and the challenges associated with caring. HIV scourge in Nigeria has been overwhelming since 1992 with debilitating impacts and this study presents the extent of fear of susceptibility and the level of caregivers burden among Nigerian nurses. To direct the study, three special objectives and one hypothesis were raised, which were to determine the extent of fear of susceptibility and perceived seriousness of HIV, to ascertain the percentage of nurses who tested to know their HIV status and the associated level of caregivers burden among nurses. The study also determined the relationship between fear of susceptibility and caregiver’s burden. A purposive sampling technique was used to select 210 nurses caring for people living with HIV/AIDS in the University of Calabar Teaching Hospital, Nigeria. Structured questionnaires and relevant validated scales such as Zarit Burden Interview [1] and abridged Champion Health Belief Model Scale [2] were used to elicit data. Results revealed that the majority of 41.0% respondents nursed fear of susceptibility despite the practice of universal precaution and perceived HIV as a serious and life threatening infection, 36.0% were not sure of their experience and 23% had no fear of HIV. 33.8% respondents experienced mild to moderate level of burden, 27.2% respondents experienced moderate to severe level of burden while 15.7% experienced severe burden. A Chi Square value of 68.2 at P < 0.05 was obtained showing a significant relationship between fear of susceptibility and caregivers burden. This paper discusses the implications of these findings for nursing and health care and recommends the implementation of educational opportunities to allay fears and minimize caregiver burden among nurses and other health care professionals.

Global Functional Performance and Caregiver Assistance in Autism and Asperger Syndrome  [PDF]
Michele Gea Guimar?es Pozzato, Thais Soares Cianciarullo Minett, Marcelo Rodrigues Masruha, Luiz Celso Pereira Vilanova
Neuroscience & Medicine (NM) , 2014, DOI: 10.4236/nm.2014.51007

Autism and Asperger’s syndrome belong to a family of neuro-developmental disorders called Pervasive Development Disorders. The aims of this study were to 1) quantify the overall functional performance and need for caregiver assistance in autism (A) and Asperger’s syndrome (AS), 2) compare the findings between groups and to normative data from Brazilian children. Methods: A cross-sectional study was carried out involving 52 children between three and eight years of age diagnosed with either A (n = 26) or SA (n = 26). The Brazilian version of the Pediatric Evaluation of Disability Inventory was administered. Results: The children with A and AS achieved significantly lower scores than that expected for normality. The children with AS had a significantly better social function than that the children with A had. However, those with A achieved significantly better scores than those with AS on activities related to self-care and mobility, requiring less assistance. Conclusion: While patients with AS are better at social interaction than typical autistic children, they exhibit greater deficits with regard to basic tasks, such as self-care and mobility, requiring greater assistance than children with A.

Psychosocial Environmental Barriers to School Attendance among Children with Disabilities in Two Community Based Rehabilitation in Rwanda  [PDF]
Jean Baptiste Sagahutu, Patricia Struthers
Advances in Applied Sociology (AASoci) , 2014, DOI: 10.4236/aasoci.2014.46019

The purpose of this study was to determine the psychosocial environmental barriers to school attendance by children with disabilities in Rwanda. A quantitative, cross-sectional, descriptive study was conducted in one urban and one rural community-based rehabilitation centre. There was a sample of 94 parents or caregivers of children with disabilities who were not attending school. A structured closed-ended questionnaire was used. The Statistical Package for the Social Sciences (SPSS) (15.0 version) was used for data analysis. The data analysis included descriptive statistics as frequency distributions and percentages. The data werepresented in the forms of cross-tables. CHI-Square was used to determine the association between variables. The level of significance (alpha) was set at 0.05. The findings indicate that in Rwanda there is a negative attitude among parents/caregivers and the community towards children with disabilities. Many parents/caregivers reported that having a child with a disability is a burden and shame in their families. A great proportion of parents/caregivers also indicated that, if they needed to make a choice, they would prioritise education for their child without the disability over their child with the disability. The majority reported the special school to be their first choice for their children with disabilities. Others reported that the community gave their children different abusive names. About the teachers’ attitude, a high proportion of parents/caregivers said that the teachers told them that their children had to go to the schools for other children with disabilities. Awareness creation and attitudinal change about disability issues are needed in Rwandese society to promote schooling for children with disabilities for the successful Education for All goals.

The experience of caring for a dying client with intellectual disabilities. A qualitative study with direct-caregivers  [PDF]
Hanneke J. W. Bulsink, Jean Jacques Georges
Open Journal of Nursing (OJN) , 2013, DOI: 10.4236/ojn.2013.38078

Background: Caregivers experience problems when caring for people with intellectual disabilities who are terminally ill. Aim: The aim of this study is to gain a deeper understanding of the experience of the caregiver when caring for a person with intellectual disabilities who is terminally ill and what influences this experience. Design: A qualitative research was carried out following the principles of Grounded Theory (GT) method, through fifteen interviews with caregivers in a living facility with continuous care. Results: The results show how caregivers strive to create meaningful moments for their client during the last period of his life. Since very few of the clients can clearly express their wishes and feelings, continuous observation is required of the caregivers for the interpretation of small signals of their clients. In that way, the appropriateness of their actions can be made certain. The results show that because of their involvement, caregivers are able to recognize clients’ signals. When a client is dying, the special atmosphere created on the ward contributes to coping with the situation and a positive experience. Conclusion: Direct-caregivers caring for a client with an intellectual disability who is terminally ill, experience an intense period of insecurity and also a special period meaningful when caring a dying client with intellectual disabilities. Their relationship with the client makes them to be more able to strive for client’s comfort. The results also show that some factors such as enough staff, clear and open communication with the physician and support of the manager contribute to the quality of palliative care on the ward.

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