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(Nieuwe) professionals in de zorg welkom, als bondgenoot in empowerment – discussiebijdrage  [cached]
Conny Bellemakers
Journal of Social Intervention : Theory and Practice , 2008,
Abstract: This article provides a critical response to the growing ‘professionalisation’ of the Dutch care sector. The author comments upon an article by Van Ewijk en Lammersen (Sociale Interventie 15(2)), concerning the nature of the profession and the professional attitude of care workers. Based on personal experiences as a client in the care sector and studies on care for disabled people, the author formulates a few lessons regarding ‘professionalisation’ of the care sector and her workers. She claims that most of the time, professional care does not meet the needs of clients. Furthermore, she argues that clients and their families are confronted with a lot of ‘disability management’: to receive the care they are entitled to, they have to develop diverse abilities, like collect and distribute information, negotiate with care workers, confront stigmatization, etcetera. The author therefore concludes that disabled people need care workers who support their empowerment and who are willing to be an ‘ally’ in this empowerment.
Empowerment of the Rural Parents/Caregivers of Children with Heart Diseases in Namibia to Facilitate Coping with the Demands of Caring at Home  [cached]
Kristofina Amakali,Louis F. Small
Global Journal of Health Science , 2012, DOI: 10.5539/gjhs.v5n2p74
Abstract: Aim: The purpose of this study was to describe how the parents/caregivers of children with heart diseases cope with the demands of caring for these children at home, with the purpose to develop a home-based health care programme to facilitate the parents/caregivers’ coping with the demands of care. Methods: A qualitative, exploratory, descriptive, and contextual study was conducted. Phenomenological data on the lived experiences of coping with the demands to care by the parents/caregivers and of living with the burden of the disease by the children were gathered and interpreted from a purposefully selected sample of 5 multiple cases of parents/caregivers and children with heart disease from the rural areas. Results: The findings have revealed poor coping with the demands of caring among the parents/caregivers, as characterized by the experiences of emotional challenges, disruptive social functioning and social relations, lack of support from the family and societal organizations, financial difficulties and of course the experiences of decreased vitality by the children. As a result, the need to empower the parents/caregivers for them to cope with providing a continuum care to their children who have heart disease was identified. The dynamics to mitigate the negative experiences were conceptualized. Therefore, the interventions of a home-based health care programme as an interface to facilitate the parents/caregivers to cope with the challenges caused by the demands to care were developed. Conclusions: The need for empowerment of these parents/caregivers can be met through the implementation of multi-component interventions, which draw together all the possible determinants factors and the coping methods to facilitate coping.
Motivations driving spiritual engagement based on a phenomenological study of spirituality amongst palliative care clients and caregivers  [cached]
Joy Penman
Journal of Nursing Education and Practice , 2012, DOI: 10.5430/jnep.v2n3p135
Abstract: Objective: The attention given to spirituality has dramatically increased, especially in contemporary western society, because of its significant link to good health and well-being. Spirituality has relevance for individuals with life-limiting conditions. It is heightened when individuals encounter this predicament. The purpose of this research was to determine the essence of the lived experience of spirituality and spiritual engagement from the perspective of palliative care clients and caregivers. One of the objectives was to understand the reasons why they engage in spiritual matters and this is the focus of the paper. Methods: A qualitative approach, based on van Manen’s theoretical framework of hermeneutic phenomenology, was chosen for this research. This approach enabled human experience to be studied as it was lived and examined to the fullest breadth, depth and extent through a dynamic interplay of several research activities. In-depth interviews of four (4) palliative care clients and ten (10) caregivers from regional and rural Australia provided rich experiential discourse of what motivated them to engage in spiritual matters. Results: The driving force that motivated the study participants to engage in spirituality was the benefits they might derive in the process of spiritual engagement. The motivations for spiritual engagement could be categorised as intrinsic and/or extrinsic. Intrinsic motivation, defined as the innate propensity to engage one’s interest in spirituality and satisfy spiritual needs, included “to have peace and acceptance”, “to seek healing”, “to be able to cope”, and “to find positive meaning in illness and suffering”. Extrinsic motivation, which comes from external influences and events that constitute the incentives and consequences to pursue spirituality, included “to communicate love and concern”, “to better care for the loved one”, “to build intimate relationships”, and “to provide comfort to others”. Once the drive or motivation arose, behavior was energised to engage in spiritual matters, reaping both self-serving and altruistic benefits. Conclusions: Spirituality provided many real and potential benefits for those who engaged in it. Simply put, it helped participants cope. It becomes imperative for nurses and other health professionals to pay attention to these phenomena. The implications of this study relate to clinical practice and the educational preparation of nurses and other health professionals involved in caring for people with life-limiting conditions.
Psychological Empowerment: Users and Professionals in Psychiatric Care before and after Mindfulness Treatment  [PDF]
Clive S. Michelsen, Peter Sundberg, Linda Ekstrand, Torsten Norlander
Psychology (PSYCH) , 2018, DOI: 10.4236/psych.2018.95073
Abstract: The current study had two purposes, namely for the first time to investigate the degree of psychological empowerment (PE) before and after treatment with Mindfulness-Based Cognitive Therapy, and also for the first time to compare mental health users with professional healthcare providers in psychiatry in this respect. PE encompasses the processes that allow people greater control over their lives and to develop critical awareness of their sociopolitical environments. Participants were 14 mental health users (3 men and 11 women) and 19 professionals (1 man and 18 women) between the ages of 23 to 65 years. All of the users were out-patients and seven of them had more than one diagnosis. The majority of the users were diagnosed as having Recurrent Depression (11 individuals). The professional group consisted of mainly psychologists and psychotherapists. Both groups were undergoing Mindfulness-Based Cognitive Therapy with exactly the same structure and content. Results showed that the treatment increased PE and self-compassion for both users and professionals and the effect remained for at least three months. Concerning perceived feeling of security and perceived satisfaction, the professionals naturally felt more secure and satisfied before treatment but at after treatment and follow-up assessments, the users had caught up. In addition, the users also experienced improvements in physical and mental health, family relations and social relationships. It is therefore suggested that PE could be used to evaluate therapeutic outcomes in cognitive behavioral therapy, and furthermore could be introduced in therapist education for the purpose of deepening self-practice and self-reflection for both users and prospective therapists.
Toward Better Collaboration in the Education of Students with Fetal Alcohol Spectrum Disorders: Integrating the Voices of Teachers, Administrators, Caregivers, and Allied Professionals  [cached]
Jenelle Marie Job,Cheryl Anne Poth,Jacqueline Pei,Belina Cassie
Qualitative Research in Education , 2013, DOI: 10.4471/qre.2013.15
Abstract: This exploratory study addresses the call for an increased presence of key stakeholders’ perspectives in educational research involving students with Fetal Alcohol Spectrum Disorders (FASDs) (Duquette, Stodel, Fullarton, & Hagglund, 2006a). Specifically, greater understandings are necessary to support the educational success of students with FASDs. The analysis of 11 focus groups and 3 interviews with teachers, administrators, caregivers, and allied professionals (total n = 60) revealed three themes: fostering relationships, reframing practices, and accessing supports. These findings have important implications for the use of a qualitaitve approach in generating evidenced-based educational practices for stakeholders reflective of enhanced communication and collaboration that better meet the needs of students with FASDs.
Systematic review of information and support interventions for caregivers of people with dementia
Carl A Thompson, Karen Spilsbury, Jill Hall, Yvonne Birks, Colin Barnes, Joy Adamson
BMC Geriatrics , 2007, DOI: 10.1186/1471-2318-7-18
Abstract: A systematic review examining evidence from randomised controlled trials in which technology, individualised or group-based interventions built around the provision of support and/or information were evaluated.Forty-four studies were included in the review. Controlling for the quality of the evidence, we found statistically significant evidence that group-based supportive interventions impact positively on psychological morbidity. However, whilst the improvement was unlikely to be due to chance, the clinical significance of this finding should be interpreted tentatively, due to the difficulties in interpreting the standardised mean difference as a measure of effect and the complex aetiology of depression. No evidence was found for the effectiveness of any other form of intervention on a range of physical and psychological health outcomes.There is little evidence that interventions aimed at supporting and/or providing information to carers of people with dementia are uniformly effective. There is a pressing need to ensure that supportive interventions at the development stage are accompanied by good quality randomised evaluations in which outcomes that are important to clinicians and carers are measured.There are an estimated 7.4 million people living with dementia worldwide and at least 3.7 million with Alzheimer's disease (AD) [1,2]. In the UK dementia affects 1.1% of the population (683,597 people) [3]. The annual total cost of care for people with late onset dementia in the UK for 2005/6 is estimated to be over €17 billion: this equates to €25,472 per person [3]. In the US, estimated annual costs are $8,064 for formal services and $23,436 for informal care [4]. Informal caregiving constitutes a significant proportion of the care provided to people with dementia. Informal caregivers can be defined as those individuals who provide extraordinary, uncompensated care, predominantly in the home. The role, carried out primarily by family members, involves committing sig
The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: a systematic review  [cached]
Maja Lopez Hartmann,Johan Wens,Veronique Verhoeven,Roy Remmen
International Journal of Integrated Care , 2012,
Abstract: Introduction: Informal caregivers are important resources for community-dwelling frail elderly. But caring can be challenging. To be able to provide long-term care to the elderly, informal caregivers need to be supported as well. The aim of this study is to review the current best evidence on the effectiveness of different types of support services targeting informal caregivers of community-dwelling frail elderly. Methods: A systematic literature search was performed in Medline, PsychINFO, Ovid Nursing Database, Cinahl, Embase, Cochrane Central Register of Controlled Trials and British Nursing Index in september 2010. Results: Overall, the effect of caregiver support interventions is small and also inconsistent between studies. Respite care can be helpful in reducing depression, burden and anger. Interventions at the individual caregivers' level can be beneficial in reducing or stabilizing depression, burden, stress and role strain. Group support has a positive effect on caregivers' coping ability, knowledge, social support and reducing depression. Technology-based interventions can reduce caregiver burden, depression, anxiety and stress and improve the caregiver's coping ability. Conclusion: Integrated support packages where the content of the package is tailored to the individual caregivers' physical, psychological and social needs should be preferred when supporting informal caregivers of frail elderly. It requires an intense collaboration and coordination between all parties involved.
Traditional healers as caregivers to HIV/AIDS clients and other terminally challenged persons in Kanye community home-based care programme (CHBC), Botswana
SM Kang’ethe
SAHARA J (Journal of Social Aspects of HIV/AIDS Research Alliance) , 2009,
Abstract: The research study done at the Kanye village of Botswana was qualitative in design and exploratory in nature. While the broad goal aimed at assessing the contributions of caregivers in the Kanye CHBC programme, this article aims at evaluating the traditional healers’ contribution as providers of care to HIV/AIDS patients and other chronically ill persons. The study conveniently involved all the 140 registered caregivers in the Kanye programme, but with only 82 caregivers turning up for focus group discussions. The caregivers were grouped in 10 focus group discussions, and all of the 5 CHBC nurses were subjected to one-on-one interviews. Both the focus group discussions and one-on-one interviews with the nurses used two slightly different interview schedules as data collection instruments. The study findings revealed that traditional healers are important players in caregiving of persons with various ailments but their role, position and contribution in the battle against HIV/AIDS is fast waning with time. The government has been challenged to map out strategies of collaboration between the two systems as traditional healers can complement the services of biomedical practitioners in this era of HIV/AIDS.
Core skills requirement and competencies expected of quantity surveyors: perspectives from quantity surveyors, allied professionals and clients in Nigeria  [cached]
Joshua Oluwasuji Dada,Godwin Onajite Jagboro
Australasian Journal of Construction Economics and Building , 2012,
Abstract: Deployment of appropriate skills and competencies is crucial and germane to the development and continuous relevance of any profession. In the built environment, the science for selecting the required skills and competencies expected of quantity surveyors and understanding the inherent dependencies between them remains a research issue. The purpose of this study was to determine the skill requirements and competencies expected of quantity surveyors. A structured questionnaire was administered among quantity surveyors, architects, engineers, builders and clients in Nigeria. The respondents were asked to give rating, on a 5 point Likert scale, on usual skills and competencies required of quantity surveyors. A secondary objective of the study was to examine the important skills and competencies and categorized them into core skill, basic skill, core competence, optional competence and special competence. The results of the study indicate the important skills as computer literacy, building engineering, information technology, economics, measurement/quantification and knowledge of civil/heavy engineering works. The results also indicate the important competencies as cost planning and control, estimating, construction procurement system, contract documentation, contract administration and project management. It is emphasized that the findings of the research have considerable implications on the training and practice of quantity surveying in Nigeria.
Participatie en empowerment in de gezondheidsbevordering: Professionals in de knel tussen ideaal en praktijk?  [cached]
Gaby Jacobs
Journal of Social Intervention : Theory and Practice , 2008,
Abstract: Deze bijdrage is gebaseerd op een onderzoek in opdracht van ZonMw (de Nederlandse organisatie voor gezondheidsonderzoek en ontwikkeling) naar de state of the art van empowerment in de Nederlandse gezondheidsbevorderings- en preventiepraktijken. Daartoe is een literatuurstudie verricht en zijn acht van de in totaal 54 projecten binnen het programma ‘Gezond Leven’ van ZonMw geselecteerd vanwege hun gerichtheid op empowerment van de deelnemers, tot uitdrukking komend in zinsneden in de projectvoorstellen als ‘meer grip krijgen op het eigen leven’, 'bewust keuzen leren maken en daar zelf verantwoordelijkheid voor nemen’, ‘helpen hun kracht en kwaliteiten om met de bestaande situatie om te gaan te ontdekken of te versterken’ en ‘erkenning van de eigen idee n en expertise van mensen’.
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