become involved in the care of people with dementia who are living at home. The
caregivers’ burdens are extensively described in several studies, and one of
the most common, unmet needs of the caregivers is the opportunity for daytime activities. The aim in this qualitative
study is therefore to explore the everyday lives of eight relatives of people
with dementia who are receiving day care services. A content analysis is
used, and three major themes emerge and are discussed: 1) when life becomes chaotic; 2) rebuilding a new, everyday life; and 3) the agonies of choice. The findings indicate that day care
service offers respite care, and, at the
same time, it gives both the relativesand
those with dementia a meaningful day. These findings can also be described as
relatives traveling a route from a situation characterized by chaos
and suffering to a new life situation that has meaning through day care
services. It is important to note that despite this new meaning in the relatives’ lives, the relatives continue to
struggle with decisions about the futures of their loves ones in
regard to the dilemma of placing them in an institution versus aging in place.
O’Connell B, Hawkins, M., Ostaszkiewicz, J. and Millar, L. (2012) Careers’ perspectives of respite care in Australia: An evaluative study. Contemporary Nurse: A Journal for the Australian Nursing Profession, 41, 111-119.
Zank, S. and Schacke, C. (2002) Evaluation of geriatric day care units: Effects on patients and caregivers. Journals of Gerontology Series B: Psychological Sciences & Social Sciences, 57B, 348. doi:10.1093/geronb/57.4.P348
Chumbler, N.R., Grimm, J.W., Cody, M. and Beck, C. (2003) Gender, kinship and caregiver burden: The case of community-dwelling memory impaired seniors. International Journal of Geriatric Psychiatry, 18, 722-732.
Andrén, S. and Elmstahl, S. (2008) The relationship between caregiver burden, caregivers’ perceived health and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing, 17, 790-799.
Watts, J.H. and Teitelman, J. (2005) Achieving a restorative mental break for family caregivers of persons with Alzheimer's disease. Australian Occupational Therapy Journal, 52, 282-292.
Kim, H., Chang, M., Rose, K. and Kim, S. (2012) Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846-855. doi:10.1111/j.1365-2648.2011.05787.x
Beaudreau, S.A., Spira, A.P., Gray, H.L., Depp, C.A., Long, J., Rothkopf, M. and Gallagher-Thompson, D. (2008) The Relationship between objectively measured sleep disturbance and dementia family caregiver distress and burden. Journal of Geriatric Psychiatry & Neurology, 21, 159-165. doi:10.1177/0891988708316857
Brodaty, H., Green, A. and Koschera, A. (2003) Metaanalysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatrics Society, 51, 657-664.
Van Den Wijngaart, M.A.G., Vernooij-Dassen, M.J.F.J. and Felling, A.J.A. (2007) The influence of stressors, appraisal and personal conditions on the burden of spousal caregivers of persons with dementia. Aging & Mental Health, 11, 626-636. doi:10.1080/13607860701368463
Miranda-Castillo, C., Woods, B. and Orrell, M. (2013) The needs of people with dementia living at home from user, caregiver and professional perspectives: A crosssectional survey. BMC Health Services Research, 13, 43.
De Bruin, S.R., Oosting, S.J., Tobi, H., Blauw, Y.H., Schols, J.M. and De Groot, C.P. (2010) Day care at green care farms: A novel way to stimulate dietary intake of community-dwelling older people with dementia? Journal of Nutrition Health & Aging, 14, 352-357.
Gústafsdóttir, M. (2011) Beneficial care approaches in specialized daycare units for persons with dementia. American Journal of Alzheimer’s Disease & Other Dementias, 26, 240-246. doi:10.1177/1533317511402315
Bruin, S.R.D., Oosting, S.J., Kuin, Y., Hoefnagels, E.C.M., Blauw, Y.H., Groot, L.C.P.G.M.D. and Schols, J.M.G.A. (2009) Green care farms promote activity among elderly people with dementia. Journal of Housing for the Elderly, 23, 368-389. doi:10.1080/02763890903327275
Graneheim, U.H. and Lundman, B. (2004) Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105-112.
Golden, M.A., Whaley, B.B. and Stone, A.M. (2012) “The system is beginning to shut down”: Utilizing caregivers’ metaphors for dementia, persons with dementia, and caregiving. Applied Nursing Research, 25, 146-151.
Etters, L., Goodall, D. and Harrison, B.E. (2008) Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20, 423-428.
Quinn, C., Clare, L. and Woods, R.T. (2010) The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: A systematic review. International Psychogeriatrics, 22, 43-55.
Gústafsdóttir, M. (2011) Beneficial care approaches in specialized daycare units for persons with dementia. American Journal of Alzheimer’s Disease and Other Dementias, 26, 240-246. doi:10.1177/1533317511402315
Lund, D.A., Utz, R., Caserta, M.S. and Wright, S.D. (2009) Examining what caregivers do during respite time to make respite more effective. Journal of Applied Gerontology, 28, 109-131. doi:10.1177/0733464808323448
Ducharme, F., Couture, M. and Lamontagne, J. (2012) Decision-making process of family caregivers regarding placement of a cognitively impaired elderly relative. Home Health Care Services Quarterly, 31, 197-218.
Bern-Klug, M. (2008) The emotional context facing nursing home residents’ families: A call for role reinforcement strategies from nursing homes and the community. Journal of the American Medical Directors Association, 9, 36-44. doi:10.1016/j.jamda.2007.08.010
Butcher, H.K., Holkup, P.A., Park, M. and Maas, M. (2001) Thematic analysis of the experience of making a decision to place a family member with Alzheimer’s disease in a special care unit. Research in Nursing & Health, 24, 470-480. doi:10.1002/nur.10005
Elliott, B.A., Gessert, C.E. and Peden-McAlpine, C. (2009) Family decision-making in advanced dementia: Narrative and ethics. Scandinavian Journal of Caring Sciences, 23, 251-258.
Andrén, S. and Elmstahl, S. (2005) Family caregivers’ subjective experiences of satisfaction in dementia care: Aspects of burden, subjective health and sense of coherence. Scandinavian Journal of Caring Sciences, 19, 157-168. doi:10.1111/j.1471-6712.2005.00328.x
Shim, B. Barroso, J. and Davis, L.L. (2012) A comparative qualitative analysis of stories of spousal caregivers of people with dementia: Negative, ambivalent, and positive experiences. International Journal of Nursing Studies, 49, 220-229. doi:10.1016/j.ijnurstu.2011.09.003