OBJECTIVE: To assess the self-reported quality of life (Qol) of children with various mental disorders and compare the scores in this population with those in children without such problems. METHODS: Self- reported Qol was assessed using KidiQoL, a generic computer-based tool with 44 items exploring four domains (Physical and psychological health, Family life, School life and Social and physical environment). The study group consisted of 139 children (111 boys and 28 girls) aged between 6 and 12 years (mean age 9.1 years) referred to an outpatient mental health unit for mental disorders, 29 of whom completed the questionnaire about 2 weeks later in order to assess test-retest reliability. The comparison group consisted of 130 children from the general population, aged 6 to 12 years (mean age 9.0 years) and attending main- stream schools in the same geographical area. RE- SULTS: The test-retest reliability of the instrument was very good with an intraclass correlation coefficient of 0.97 for the total score and above 0.90 in all domains. No significant differences in domain and total scores were observed according to gender or developmental age. Children with developmental disorders or schizophrenia reported significantly lower QoL in the Health domain than children with other types of mental disorders. In all domains and for the total score, the children with mental disorders re- ported significantly lower QoL than the children from the general population; CONCLUSION: KidIQoL has been found suitable and psychometrically valid in children with mental disorders. Its use could help the assessment and adaptation of psychiatric care.
Bastiaansen, D., Koot, H.M., Bongers, I.L., Varni, J.W. and Verhulst, F.C. (2004) Measuring quality of life in children referred for psychiatric problems: Psychometric properties of the PedsQL 4.0 generic core scales. Quality of Life Research, 13, 489-495. doi:10.1023/B:QURE.0000018483.01526.ab
Bastiaansen, D., Koot, H.M., Ferdinand, R.F. and Verhulst, F.C. (2004) Quality of life in children with psychiatric disorders: Self-, parent, and clinician report. Journal of the American Academy of Child and Adolescent Psychiarity, 43, 221-230. doi:10.1097/00004583-200402000-00019
Clark. D. and Kirisci, L. (1996) Posttraumatic stress disorder, depression, alcohol use disorders and quality of life in adolescents. Anxiety, 2, 226-233.
De Civita, M., Regier, D., Alamgir, A.H., Anis, A.H., Fitzgerald, M.J. and Marra, C.A. (2005) Evaluating health-related quality-of-life studies in paediatric populations: Some conceptual, methodological and developmental considerations and recent applications. Pharmacoeconomics, 23, 659-685.
Detmar, S.B., Bruil, J., Ravens-Sieberer, U., Gosch, A. and Bisegger, C. (2006) The use of focus groups in the development of the KIDSCREEN HRQL questionnaire. Quality of Life Research, 15, 1345-1353.
Eiser, C., Havermans, T., Craft, A. and Kernahan, J. (1995) Development of a measure to assess the perceived illness experience after treatment for cancer. Archives of Disease in Childhood, 72, 302-307.
Gayral-Taminh, M., Matsuda, T., Bourdet-Loubère, S., Lauwers-Cances, V., Raynaud, J. and Grandjean, H. (2005) Self-evaluation of the quality of life of children aged 6 to 12 years old: Construction and first steps in the validation of kidlQol, a generic computer-based tool. Sante Publique, 17, 167-177.
Glaser, A.W., Furlong, W., Walker, D.A., Fielding, K., Davies, K., Feeny, D.H. and Barr, R.D. (1999) Applicability of the Health Utilities Index to a population of childhood survivors of central nervous system tumours in the U.K. European Journal of Cancer, 35, 256-261. doi:10.1016/S0959-8049(98)00367-0
Harding, L. (2001) Children’s quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clinical Psychology & Psychotherapy, 8, 79-96.
Juniper, E.F., Guyatt, G.H., Feeny, D.H., Griffith, L.E. and Ferrie, P.J. (1997) Minimum skills required by children to complete health-related quality of life instruments for asthma: Comparison of measurement properties. European Respiratory Journal, 10, 2285-2294. doi:10.1183/09031936.97.10102285
Landgraf, J.M. and Abetz, L. (1996) Measuring health outcomes in pediatric populations: Issues in psychometrics and applications. In: B Spilker editor. Quality of life and pharmacoeconomics in clinical trials, Philadelphia (PA): Lip- pincott-Raven, 793-802.
Raat, H., Bonsel, G.J., Essink-Bot, M.L., Landgraf, J.M. and Gemke, R.J. (2002) Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. Journal of Clinical Epidemiology, 55, 67-76. doi:10.1016/S0895-4356(01)00411-5
Rebok, G., Riley, A., Forrest, C., Starfield, B., Green, B., Robertson, J. and Tambor, E. (2001) Elementary school -aged children's reports of their health: A cognitive interviewing study. Quality of Life Research, 10, 59-70. doi:10.1023/A:1016693417166
Ronen, G.M., Rosenbaum, P., Law, M. and Streiner, D.L. (1999) Health-related quality of life in childhood epilepsy: The results of children’s participation in identifying the components. Developmental Medicine & Child Neurology, 41, 554-549. doi:10.1017/S0012162299001176
Sawyer, M., Whaites, L., Rey, J., Hazell, P., Graetz, B. and Baghurst, P. (2002) Health-related quality of life of children and adolescents with mental disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 530-537. doi:10.1097/00004583-200205000-00010